Posted 6/4/2007 6:16 PM (GMT -6)
Denda, I had a couple of negative ANA test results before I had a positive one. This can be a long and frustrating journey and it pays to do some research and keep a journal of all your symptoms. This forum has been a godsend to me both for informational purposes and for moral support. Keep us up to date on your progress!

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 6/5/2007 6:24 AM (GMT -6)
Thanks to you all for your advice and experiences. I learned alot with Lynwood's info. And it helps to know everyone elses experiences as well. I'm just tired of this journey already and have only been here about 9 mos. I'll report back when I know more. The following are the only tests that I know have been done on me:

C-Reative = .08
Methylmalonic Acid = <.1*
Glycohemoglobin = 6.1
Glucose = 70*
CK(CPK) = 54
Thyroxine Free = .9
TSH = 2.275
Vitamin B = 450
Sed Rate Westergier = 8
Anthrombin Antigen = Test Not Ind (I'm thinking this means it wasn't ordered?)
Lupant Screen = Negative
ACTPart Thromboplastin Time = 26.4*
ANA = Positive
ANA Titer = 1:320*
Anti ds DNA Antibody = None detected
Rapid Plasma Reagio = Nonreactive
ENA Screen = Non Detected
Senne Portease3 AB = 2*
Myeloperoxidase AB = 2*
ANGA FA= None detected

I don't know why there are astericks beside some of them. But my neuro says everything else is normal. I might have misspelled some of the tests, the faxed copy I have is horrible to read, very dark.

Thank you all again.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Posted 6/5/2007 8:57 AM (GMT -6)
Denda, I also wanted to welcome you. I'm really sorry about everything you have been through and that you still don't have any answers as to what is causing your health problems. As you have already experienced it can be a long frustrating journey to try to get an accurate diagnosis. As some of the others have said, a person's ANA can fluctuate between positive and negative and there is a small percentage of people with lupus who don't have a positive ANA - a positive ANA can be present in several diseases.

I'm glad you joined us and please continue to ask questions. We'll do the best we can to try to answer them. I'm afraid I'm not much help with the labs you listed - hopefully someone else can give you a little more insight into what they might mean. Do you know if your neuro is planning to send you to a rheumatologist?

Hang in there and know that we are here for you. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Posted 6/5/2007 9:10 AM (GMT -6)
Thanks for the welcome!

My neuro is waiting to see what the MS specialist wants to do. She mentioned sending me to a rheumatologist if the MS specialist is done with me. I should know something in the next few days I suppose. Thanks again for your help.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Posted 6/6/2007 3:50 AM (GMT -6)
Hi Denda, I just wanted to say welcome to the group. I'm sorry I didn't say hello eearlier. I havn't been around too much lately. As for the asterisks nets to your lab tests I won't say for sure. It's 3;30 in the morning and I don't have my labs in front of me but the ones I do know that have asterisk or out of the proper range. Such as your ANA has an asterisk and it is on the possitive side.which is one first sign of lupus. and your sedimentation rate (sed ) rate doesn't have an asterisk and it is 8 which is in the good range. So if I had to guess I would say that if it has a asterisk than is is not a normal result. Don't quote me on it but off the top of my head I would say that's what the foot note would be for.
anyway like I said it's the middle of the night so I hope that made some since
welcome again
God Bless
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!

Posted 6/6/2007 7:29 AM (GMT -6)
Thanks Okie -

Still waiting for my neuro to call and let me know where we go from here. I know she is waiting to talk to the MS spec and he is out of town until next week. I'll report back when I have any more info.

Thanks again to you all.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

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