First off thanks to everyone who responded to my previous post.
Second I need a smiley face pulling his hair out!!
I went to the Rheum today to get my lab results. This was the first time in over a year I had them drawn. A year ago my labs were:
ANA- pos.- 1:1280
ENA RNP - 54 range:<20
ENA SSA - 123 range:<20
ENA SSB - 41 range:<20
During this time I felt bad tired all the time no matter how much sleep, very weak, and if I got a paper cut it would get infected and take weeks to heal.
OK today I feel worse than I did 1 year ago and my labs were:
ENA RNP - 21 (but this Rheumo range was 0-99)
ENA SSA - 8
ENA SSB - 2
and the only thing low was my vitamin D level.
Am I crazy. I asked so does this mean I no longer have sjogren's and MCTD. Her answer was autoimmune diseases are always changing. WHAT? what does that mean. Is this all in my head. If not why do I feel so bad? Please someone give me advice.
Dx: Mixed connective tissue disease '06, sjogren's '06, GERD '05, insulin resistance '01, ADHD '01, major depression '98, polycystic ovarian syndrome '97
Adderal and lots and lots of vitamins