I'm so glad we haven't scared you away with all of our advice, Mariela. Oh, I think we all hate the being so stinkin' tired the most. We even hate that more than hurting, at least I do. And compared to you we're pretty old! Well, some of us anyway. (Now a lot of the others are goin' speak for yourself emmie. That's because I'm 52 and they know I've got a couple of the cutest grandkids evers and they are a decade or two or so younger than me. Although there's a few in my age group here too
all you can do about
the fatigue is read about
the spoon theory on that link you were given way back up on the thread. Then start figuring out how many spoons it takes you to do what. The tricky part is that some days it might take you say 3 spoons to get through your typical morning but on another not so good day you will use up 6 spoons! We all struggle with this.
I am finally figuring out that I need to take breaks whether I think I need one or feel like it or not. That seems to help me from reaching the really horrible point of no return or hitting the wall.
Remind us....how much plaquenil did your doctor prescribe for you? It can take several weeks to a few months for it to reach it's maximum potential. In fact, it's so gradual you might not notice it. But don't quit taking it....maybe I already said this. Sorry. It's late and my lupie brain might be taking control so I'll say good night to you. Hope it's a better day tomorrow. Glad you're doing some volunteering this summer; hope it's enjoyable for you. Keep us posted on it.
SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy