Posted 6/11/2007 11:33 AM (GMT -7)
I haven't gotten on cellcept, but I'm planning on asking about it. I'm having real ut problems and my kidneys hurt all the time. The cat scan didn't show anything, but I've learned that it depends on who reads them. Once thing that might help would be to eliminate any other medicines that might be affecting your kidneys adversely, so you could tolerate the ones you really need. Also, did they check you for addison's disease? In that case, cortisone would provide much more relief probably than prednisone, maybe be easier to handle, I think they may use a combination of both. I know cortisone always helps me, prednisone works for two days, then I'm a mess for a month. I'm supposing they check your ACTH and cortisol regularly, my endo does, and it's always low, because the pred causes adrenal insufficiency and I probably had it anyway before that because of AI disease. Maybe there is something, like non-necessary that you could avoid, based on your doctors suggestions. I don't take a multivitamin high in vitamin c anymore because that vitamin is water soluable and increases the acid in my UT causing more problems. I would call the doctors office, even though it is busy, and talk to the nurse and leave a detailed note at least. You are on a lot of meds that are hard on your body. That way maybe you can stay on the meds that help you, or at least better tolerate a new med. I have to do that for my liver. Or switch your meds around to different types of meds to give your kidneys a break--that is the ones processed by the kidneys. I hope you feel better soon. I hate AI and endocrine diseases and I am so sorry you are suffering. I hope you feel better and you will be in my thoughts and prayers. Its so hard when you have endocrine stuff with the autoimmune disease too.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments