Posted 6/12/2007 10:44 PM (GMT -6)
Hippi,

How great that your amitriplyne seems to be working! If it does, some extra fatigue in the morning may well be a small sacrifice to pay. I have a great deal of trouble getting around in the morning, probably for a combination of reasons. RA causes extreme stiffness for an hour or so in the morning, my pain in general is the worse when I wake up, then the neurontin and lunesta I take at night leave a hangover, and then just feeling bad in general makes it hard to get going. On my worst days I'll run a big tub of hot water and soak in a bubble bath till I feel better. It helps my joints and my mood as well. I might stay in there for an hour. By the time I get out and cool off I usually feel better. Some days, though, I don't have the energy to crawl into the bathtub.

I bow down in awe of those of you who have to get up and go to work in the morning. I don't even make doctor's appointments until afternoon.

But how great that you're getting relief from fibro pain you didn't know you had. Amazing how many things can be wrong that you're not even aware of. Your idea of taking the amitriptyline earlier sounds like a great one. I'm supposed to take my Lunesta and Neurontin before bedtime but I take them both three hours before bedtime.

I hate the problem you have with the sun. If there's a lifeguard just keep your back to your kids. They'd love that wouldn't they. But seriously I don't know what you're could do that you're not doing already.

Well, keep up the good work. I'm going to see my therapist tomorrow and have scheduled a massage!!! yeah!! for Thursday morning after my bath. I can hardly wait. She has clients with lupus and RA so we'll see how she does.

Get a good night's sleep and wake up refreshed as a baby!

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 6/12/2007 11:07 PM (GMT -6)
My only thoughts about the water reflecting sun are the same as usual - shade, sunscreen, protective clothing, hats, sunglasses, then repeat! They say about 2 oz of sunscreen per hour.

Maybe a tent?

Sorry, no real useful ideas come to mind.
Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Posted 6/13/2007 8:31 AM (GMT -6)
Hi hippi,

I hope you are feeling better today. :-)
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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Posted 6/13/2007 8:45 AM (GMT -6)
Thanks everyone. I tried taking my nightime meds earlier last night (about 3 hrs before bed) and didn't sleep nearly as well, so I'll go back to taking them about an hour before I go to bed and just deal with the morning fog and grog. It's amazing how much of this stuff is trial and error. We're still planning to go to the pool later today and I will try to be even more careful than I have been.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 6/13/2007 4:05 PM (GMT -6)
Hi Hippi
 
Is using an umbrella optional at the park or pool? LOL hippi, dont thump yourself in the head too hard, or those lupus headaches will be back tongue
And about your tapering the pred, didnt I read here somewhere, that the slower you lower, the better the chances for success?  I been doing 5 and 10 mg everyother day for weeks now, and so far..knock on wood, all seems well.  Maybe next week I will try 2.5 and 10mg everyother day?
 
Anyway..glad you are starting to feel better hon
 
Diane
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
Bisoprolol 5 mg, Propafenone 150mg twice daily.  coumidin 4 mg, plaquenil 500mg, prednisone 10 mg sometimes more, metformin 2000 mg, diamacron, wellbutrin,fenofibrate
 
 
 
Courage is fear that has said it's prayers
I have lost a life - not my own.
But it would have been easier to have lost my own life
than to have lost the life,I loved more than my own
 

Posted 6/13/2007 5:16 PM (GMT -6)
Hi Hippi,

I've been thinking about you today and am anxious to know how things went at the pool and whether or not the sun and the heat get you down again.

I agree, this trial and error business can get tiresome, but in the long run it's probably our best bet. I'm having another good day today and even got out and had lunch with my son. Breakfast with my daughter yesterday and lunch with my son today -- I must be getting better! For a change I feel like getting out of the house.

Your kids are lucky to have such a great mom. Let us know how your day went.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 6/13/2007 6:49 PM (GMT -6)
I actually had a pretty good day, so much that my friend who was with me even noticed and she thought I seemed less stiff and sore too. I used tons of protection at the pool. Lots of sunscreen and a cover up. Then I sat under their big umbrellas and I took one of my own umbrellas and used it while sitting under the big umbrella. My face is pretty red and I'm tired, but I'm really doing okay, considering I was outside for so long.

I'm like Carol and am really afraid to say how good I actually feel right now. I am praying that the addition of this new med in the right dose was maybe the missing piece for me. The prednisone was a huge help and now the amitriptyline is helping me get restorative sleep and is helping to keep my headaches at bay, so I'm nervously crossing my fingers that this is the beginning of a long stretch of good days for me.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 6/13/2007 10:00 PM (GMT -6)
me too Hippi, I really hope this new drug is what you needed, and now that summer is upon us, you will be able to enjoy it more with your kids :-)
A/Fib, diagnosed Aug, 1997, R/A diagnosed in Sept. 1998, Pericarditis and Lupus in Dec, 2003, Diabetes, diagnosed march, 2004
 
Bisoprolol 5 mg, Propafenone 150mg twice daily.  coumidin 4 mg, plaquenil 500mg, prednisone 10 mg sometimes more, metformin 2000 mg, diamacron, wellbutrin,fenofibrate
 
 
 
Courage is fear that has said it's prayers
I have lost a life - not my own.
But it would have been easier to have lost my own life
than to have lost the life,I loved more than my own
 

Posted 6/13/2007 11:20 PM (GMT -6)
Hippi, three cheers for another good day! I hope you sleep better tonight than you did last night.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 6/15/2007 11:28 AM (GMT -6)
Hi hippie,
Glad you are feeling better. I was going to remind you of the medicine's side effect of greater sun sensitivity. With imipramine, I had a few side effects but they went away as I adjusted to the medication. Maybe that's all that happened. I'm glad you are doing well on it and are feeling good and able to get out and do the things you like to do!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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