Almost all the symptoms you are saying of from the liver, the sun, the trigger med, the fever feeling but off a bit, joint pain, nausea, vomitting, diarhea and/or I get constipation during these attacks. I too heard the same crap so I took benadryl, went outside and took pictures to take to the doctor. They almost crapped their pants.
So for them to say well your skin looks fine say yes it may now but whip out the pictures girl, because those don't lie. How could they say that then?
And if you do have this the best doctor is a Hematologist for this once you get a positive.
If you are going to get tested the best for to start off with is the 24 hour urine collection and a porphyrin blood plasma test. The reason for both is the blood is positive in most cases, and urine during a severe high attack. Do not change how you do things until after the test. Also both cannot be exposed to the sun and the must be refrigerated or frozen for the blood. All things must be kept dark so when you go to the doctor, let me know and I will get you the information. The stiff neck etc, is it too. I am glad you found your blinds at the Home Depot. I bought the 12 mil roll up shades and but those underneath my decorative bampoo shades but of course did not get as lucky with the deal u got.
Sorry if I sounded insistant. I just would hate you to get as violently sick with this dd as I did. Oh the cold limbs and neuropathy, I get those during attacks too.
Keep me posted,
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescript
ion 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.