Posted 6/18/2007 2:06 PM (GMT -6)
Veronica - sounds kind of like a flare, but it may be your body has something going on it can't handle. It took doctors years to find out I had Lupus. May I say too late also. I have a family history of it too. But doctors didn't want to hear it. I decided to make a list of all my odd test results over the years, my obgyn oddities, and all my ailments and diagnoses over the years. It really added up and made a picture. They still shooed me off, but when I had pericarditis, costrochondritis, blood clots in my eyes and dementia one year, they definitely took notice. Did a lot of bloodwork and lo and behold I had Lupus. I had an unusual manifestation of the disease and it was CNS Lupus to boot. Keep a general diary. It made the diagnosis that much easier for the doctors to make. Some are very hardheaded and if it isn't the exact package they are use to seeing in Lupus patients or what they think a Lupus patient should look like they blow you off. As I said back then, either way I was sick an awful lot and needed help and understanding. Thankfully, I had here to come for support and understanding. It gave me the strength to demand treatment. I doubt I would be here now if that didn't happen.
First things first, definitely need to get your iron under control. Very important. Honestly, it is possible that this is what is causing this flare. It can make you real sick. Put the fire out first and then go find the cause, as they say.
I hope you get the answers you need. It can be an overwhelming uphill battle at times. Take care - Kristin
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurgitation, dementia/Alheimer's (improving); GERD; blood clots in eyes/vision loss, narcolepsy, rheumatic arthritis and arthralgia, IBS, ovarian cysts, raynauds, EBV/CFS, mild inflammation of liver and spleen. Rx: Atenolol, Aricept, Flexeril, Motrin, just off Provigil
Previous 1996-2006 - discoid rash, hemi-pelagia, migraines, hands/feet sensory loss, anmesia, PTSD/Depression, imbalance, weakness and muscle spasms, shooting pain, dizziness, fine motor movement problems, miscarried 2 children & severe complications w/2 I managed to get out, False positive syphilis, swollen glands, high fine speckled & homogeneous ANA; Positive IgM; constant staph and strept UTI infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, high Methylmalonic acid, high Epithelial cell counts, off and on low red/white or pallet counts, hypothyroidism/Hashimoto's disease, postural hypotension, dyspnea, periods of hypertension/hypotension, lipedemia, mouth/lip ulcers, pneumonia, skin tightness/hardenes, ligament conjectures, weird purple pimple rashes on legs, hypopigmentation (leopard spots) on legs and arms, vein swelling, abnormal menustration, uterian fibroids and some of the current problems. Rx: usually Toridol, nerve blockers and antibiotics.
P.S. You asked.... Probably forgot a few.