Posted 6/20/2007 9:05 PM (GMT -7)
Pat, Des and all,

in the past my journaling was done long hand in pretty journals. that hurts my hands too much now. most daays its much easier to use the keyboard so it's computer journal for me. that's also where i keep all my questions and symptoms I want to remember for my docs. I use a different color ink for those so I can find them when it's time to go to the dr. I print them and take them with me. I write their answers and other visit notes after i'm home (or in a day or two). These are the adaptive things I've learned to do since my former brain that I used to be able to always count on, no longer functions reliably! It's also good to use the different color ink for the medical info so I don't accidentally let the rheumie know that I wanted to choke my husband the day before yesterday.

xoxo emmie
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SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Posted 6/21/2007 9:21 AM (GMT -7)
Wow, some great tips on keeping the journal emmi, thanks!

I have kept journals off and on in my life like i said before. nothing specific really to illness though. More about my emotional pain. Sometimes I go back and read them and they break my heart for myself lol!

But I agree, writing is too much for my arms right now. I have an old laptop that is good for about nothing but word processing, so I will use it as my journal.

Am still laughing about the wanting to choke your husband. I think I will keep a medical log... and then a journal for me. Good grief if my docs knew all the problems I had in my life with marriage ect, they'd probably send me to the funny farm. (and rightly so) hehe

And the former brain! How well I know it! The day that I wrote the original post "Pity Party".. I have almost no recolection of. It was as if it were all a dream. Very strange. I don't know if I was too tired and weak to process the information correctly or what. Kinda scary though : ) See, told you I was headed for the funny farm.



Thank you again!
Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

Posted 6/21/2007 9:06 PM (GMT -7)
Darlene,

I'm the funny looking lady with the pitchfork at the Funny Farm. I'll be waiting for you :-)

emmie
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SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Posted 6/21/2007 9:41 PM (GMT -7)
What a terrific thread.

I want to share something that was printed on a card my therapist handed to me this week - (and something that will be a good way to begin my continuation of a journal --

I saw grief drinking a cup of sorrow and called out,
"It tastes sweet, does it not?"

"You've caught me." Grief answered,
"and you've ruied my business."
"How can I sell my sorrow when you know it is a blessing?"

Rumi (1207-1273)



Darlene, you've given us all a great gift by allowing us to be a part of your pain and by sharing yourself with us. I feel better already. I hope you do to.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 6/22/2007 7:36 AM (GMT -7)
Emmi, lol, I will look for you when I arrive. Although, in thinking deeper about the matter, I do believe I am there already! I mean.. wouldnt being locked up in a nice quiet facility be a trip to the "sane" assylum.

I've often envied nuns. Sometimes when I am beyond myself I imagine being in a convent. The enduring quietness of the stone walls, the cool peace of the rock floor, and silence! ahhhh : )

Pat,
What a jewel you have shared with us! I am writing that down, and passing it on. Tears ran down my face when I read it. Wow... I still have chills! It is so incredibly true, as are most things that endure.

Thank you!

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

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