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New Member

Date Joined May 2007
Total Posts : 15
   Posted 6/18/2007 1:36 PM (GMT -7)   
Hi, I don't have lupus but the dr suspects my mom might.  Her complaint that sent her to the doc is what he is calling Raynauds.  Her description is her finger will go numb, turn white and get very cold.  She says it can be pretty painful.  My question is this only related to lupus or can you just have Raynauds?  Thank you!

Forum Moderator

Date Joined May 2005
Total Posts : 7653
   Posted 6/18/2007 2:05 PM (GMT -7)   
Raynaud's Phenomenon is a disease of its own, it does not have to be associated with Lupus.

See for more information about Raynaud's.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Regular Member

Date Joined Jan 2007
Total Posts : 279
   Posted 6/18/2007 3:15 PM (GMT -7)   

As I understand it, Raynauds can be "primary" (you only have it) or "secondary" (it is a second disease and you have another one that causes it). I had some out of range bloodwork first but then it was Raynaud's as my big symptom that led to tests that led to the tests that led to my diagnosis of MCTD.

So, we hope your Mom just has the Raynauds and nothing else. But that may not be the case so I hope she is having further testing.

Good Luck,
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)

Veteran Member

Date Joined Apr 2006
Total Posts : 1334
   Posted 6/19/2007 11:07 AM (GMT -7)   
Raynauds can be primary or secondary.  It is often secondary with different auto immune diseases: lupus, scleroderma, mctd are some of them.
I have mctd and raynauds is secondary.  It has slowly gotten better but it needs to be watched no matter whether it is primary or secondary.  There are treatments if it gets too bad.
Was able to be outside this winter in -11F without a problem although I dressed warmer than in the past.  It can be dangerous if severe and untreated.  So far, mine has been mild and has not warranted treatment.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's syndrome.
Meds: prednisone (7mg & tapering), 150mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

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