My regular doctor consults with some nephrologist. I have no insurance so I can't see any specialists-the doctors I see are for the homeless/unisured. I am fortunate for their consulting the matter. I have no idea who the nephrologist is though. I haven't had any test done other than the x-ray of the heart and entire torso region, specifically kidneys and liver. Had liver problems a few months ago and they are still concerned that with the kidney stuff the liver may fail. Not sure how all that works, but the liver has been doing much better. The lesion even went away. The E.R. said that if the kidney starts failing other organs may fail. I didn't know about
Unfortunately, there is no where's to go for a 1st or 2nd opinion. No medicine given for the kidneys. Just the ACE inhibitor for the heart -happy about
that. Apparently, my heart is not working well because the kidneys - even though they are blaming it on the Mitral valve prolapse and enlargement of the left ventricle. I can figure out for myself what is going on though. The enlargement is new and the MVP I was diagnosed about
2 years ago is/was no big deal. Inhibitor is working thankfully, only have problems late at night and morning. Also, my lungs are doing well I think, only a small cough once in a while and doc seems content with that.
Basically, just curious on what could cause a kidney to swell and hurt like that.
I generally try to figure out the different options to check up on the doctors to make sure they don't miss anything. Unfortunately, I am better at diagnosis than they are most of the time. I guess because I have time to research the mattter. Only the expensive hospitals usually get it right the first time. I can't afford them as they usually don't accept charity care. I may go to the expensive hospital, but they won't keep me over night because of the lack of insurance. At least they may be able to better tell my doctor what is wrong and what to do. It is a crazy process. I like to be "armed and ready" sort-of-speak.
Thanks for your ideas - Kristin
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.