Hey CityGirl - Haven't seen your name in eons, kind of got lost myself for a while there. Did they ever find a diagnosis for you or are they still trying to get it ironed out? Like me, you sounded like you fell into that "it doesn't make sense" category. My symptoms were not typical for lupus or CNS lupus during the first 8 years. Is now though. My body got it a little backwards I think.
Well, glad to hear from you. Dr. and testing burn out is normal. Leave me alone! syndrome I call it. I can run but unfortunately not hide. At least not for long. Trust me, get all you can done now. This stuff is hitting hard me now and still searching for some of the clues as to what is the cause. Helps them know your body, how it hits and the medications it may best respond to. Just hopefully your doctors are better than mine and actually know what to do with the information.
Hope to hear from you soon & take care - Kristin
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.