Sheryl, my heart goes out to you. Dealing with all of this is so hard, and waiting for a diagnosis can make it even harder to cope with. Ansd then you also have all your other health issues that your are already dealing with on top of a possible lupus diagnosis. Your plate is full, to say the least. I'm also sorry that your husband was not feeling supportive today. I worry a lot about
my husband getting sick of me being sick - I know it can be really hard and stressful on our spouses. It also sounds like you both have some added stress with worries about
your husband's prostate. I really hope everyting with his appointment turns out okay.
It sound slike your pain is getting pretty out of control. For me, tramadol helps my mild-moderate pain, but I have to use vicodin for the more severe pain. If your current meds aren't relieving your pain, there are a lot of other options that are stronger. I don't know how
open your doc is to prescribing pain meds, but it sounds like what you are using isn't effectively controlling your pain anymore. Also if your pain gets too out of control tonight, the ER is always an option. Being in pain and feeling like there is no relief in sight is a horrible feeling.
I'm really sorry about
all the stress in your life, which can then cause your physical symptoms to get worse. I know when I am stressed both my pain and fatigue increase.
I really hope you get in to see the rheumatologist soon and that you get some answers and at least a treatment plan for treating your symptoms. It might take a while to get a diagnosis. Hang in there. You are among people who understand how hard this disease can be to deal with both emotionally and physically. We are here for you.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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