Thank you Bill
My Rheumy is going to run some tests. It is a strange feeling, more concentrated in my tricep area and shoulders. Folding clothes has become a nightmare. As has washing my hair. So yes to the lifting arms above head. But it extends into my trunk as well, holding myself up is almost impossible. If I lay back in bed, propped up for 30 minutes or so, I can get up for a little while again. Along with this, my entire body feels heavy, as if it weighed far more than the 130 pounds it is. My face feels heavy and tired.
Its strange, and somedays are much worse than others. I had something similar happen to me about a year ago, and no diagnosis was given. but then I wasnt diagnosed with any autoimmune at all. Now with the Lupus diagnosis, it gives me other places to search for a cause. At that time it was also in the backs of my thighs, but extending throughout whole body.
This recent episode came on abruptly about 5 days ago.
It scares me as I feel trapped, claustrophobic, in my own body.
Rheumy also said she can give me a short burst of prednisone to see if it helps.
It is worse from 11:30am til 8 pm. Odd huh?
Polymyositis affects the proximal muscles...those coming off your trunk. Most affected are around the hip girdle (lower back, hips, upper legs) and the shoulders (upper arms, neck shoulders).
Dermatomyositis can also affect the proximal muscles but hits the distal muscles (those away from the trunk) as well.
I have PM but both proximal and distal muscles were hit hard.
PM can be up and down in a mild or developing case. Weakness can be slight or almost complete loss of strength like my case. Fatigue will follow. Even the smallest task can be excruciatingly exhausting in a severe case.
I would ask your doctor about the possibility of myositis causing your muscle problems. There are specific diagnoses but usually it takes a muscle biopsy to make sure.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone (7mg & tapering), 100mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it." Helen Keller