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Regular Member

Date Joined Jun 2007
Total Posts : 64
   Posted 6/22/2007 2:15 AM (GMT -6)   
I saw my Dr primary again today and we changed my pain meds to tramadol 50mg to 150mg every 6hrs, vicodin every 6 hrs, lyrica 100mg 3x a day. I finally got a rheumatologist appt July 26 and neurologist appt July 30th...that gives me a few weeks to do some research compile a list of questions for the drs, and a list of symptoms and physical and emotional impact. In talking to my friends and family they have helped me remember many things.I have been having symptoms way back to early 20's although I wasn't diagnosed with diabetic neuropathy until 2003...Thanks to all of you who have helped me in past few days to begin to piece the puzzle pieces together. I am feeling better emotionally today just knowing I am not losing my mind and beginning to find direction.....thanks to all

Blessing to each and every one of you....


Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 6/22/2007 6:46 AM (GMT -6)   
Hi sheryl, don't forget to get the family history of illness as well. I remember when i came here I was so overwhelmed. I was thinking. Ok they thought it was another problem so I studied that, than they said no it's something else so I studied that. Than they said no it's Lupus and by than I didn't want to study about any more diseases. On top of that I was saying why does it have to be Lupus? of all the things it could be why does it have to be something that is so hard to understand? The lousey disease is mind boggeling and in the beginning completely overwhelming. None of it made in sense. Truth is if I really think about it it still doesn't make any sense. I mean come on I get patriotic toes red white and blue! I mean what the heck is that about? My face lights up like rudolph? My legs swell up and turn red enough to glow in the dark. My hair falls out? I feel like death warmed over and that all of the sudden, it's Hi everyone I'm feeling great today how bout you??????????. It's is a crazy disease. The feeling of loosing your mind goes with the territory. I'm so glad you found the group and that are so many wonderful people here to help you. Having a supportive family is quite a blessing too. I'm glad you are getting your pain under control. I think the pain wears me down more than anything.
I hope you have a great day!
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 6/22/2007 8:05 AM (GMT -6)   
Good Luck Sheryl :-)

Remember to include all symptoms that you are having, even if you don't think they have anything to do with anything. It truly is a puzzle and you may be holding out on that one piece that can be the "Aha!!" for the doctors. I learned that the hard way. Please let us know how it goes.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/22/2007 8:58 AM (GMT -6)   
Sheryl, I hope the change in meds helps with the pain. I am a strong believer in pain management and in being as comfortable as possible. I really hope you get a great rheumy at your appointment in July. Everyone had great suggestions for your visit. The other suggestion I have is to go there without make-up on so the doc can see your skin. This was helpful for me because my rheumy could clearly see some skin issues I was having. I'm really hoping your get some answers at your appointment or at least a good start toward some answers.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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