Welcome Steph77

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Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 6/22/2007 7:11 PM (GMT -6)   
Hi Steph, I noticed your post in IBS and I figured you meant for it to be here instead so I copied it over here. I hope I was right.

Welcome Steph :-)

Steph77 said...

Over the past 10 months I have been diagnosed with Hashimotos, Pernicious Anemia and Undifferentiated Connective Tissue Disorder. My Endo will not put me on meds yet, because my thyroid function is not low enough. I am on B-12 shots for the Pernicious Anemia, and my rhematologist wants me to take Plaquenil for the UCTD. I have not started on the Plaquenil, because I would like to get pregnant within the next few months and I do not want to be on medication if I can stand it. I have gained 20 lbs in 45 days and I am still often very tired. All of the doctors say that the weight gain is not from the autoimmune disorders, but it came on so fast and at the same time all of this began. I often have strange aches and pains that I have learned to ignore. I have a positive ANA with a nucleolar pattern and sometimes my RF is out of range and sometimes it is in range. I don't really know where to go for good information to become more knowledgeable about what is happening to my body. Can anyone help?

Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


Post Edited (dbab) : 6/22/2007 6:17:43 PM (GMT-6)

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 6/22/2007 7:32 PM (GMT -6)   

Welcome to the forum. Des directed you to just the place to get answers and moral support. I'm afraid that moral support is all I can offer right now but others will check in to say hi and help you figure out what's going on. I have a huge headache so am not thinking too straight, but did want to say hi.

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Apr 2005
Total Posts : 1529
   Posted 6/22/2007 11:05 PM (GMT -6)   
Hi Steph,

Welcome to our little corner of the world. You have been hit with a lot of diagnoses in a short period of time. You didn't ask for this piece of advice and feel free to tell me to shut up and mind my own business. My own grown daughters do when I am out of line so I won't be offended!

You mention that you would like to become pregnant within the next few months. If your thyroid disease is not well controlled yet, that can play havoc with a pregnancy. If you are having RA values and symptoms that are all over the place and untreated that needs looking into. Your rheumy has given you plaquenil for a reason, but you don't want to take it for your own good reason. My suggestion would be to see your ob/gyne and fill him/her in on the whole picture. See what he/she advises and take it from there.

Again welcome and good luck getting to the bottom of all your troubles.

xoxo emmie

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 6/23/2007 6:14 AM (GMT -6)   

Hi Steph, I can't give you any advice but I can say welcome. There are many wonderful people here who can answer your questions and make you feel so much better about your illness.


diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

New Member

Date Joined Jun 2007
Total Posts : 13
   Posted 6/23/2007 9:22 AM (GMT -6)   
I appreciate any and all advice. I have an appointment with my gyno in a week and will discuss it all with her.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 6/23/2007 2:01 PM (GMT -6)   
Hi Steph,
   Welcome to the forum. Just wanted to add the ANA pattern meanings if you haven't seen them yet... :-) . I hope this helps some. Take care and keep us updated please.

1. Rim Pattern
    A. Systemic Lupus Erythematosus (Most Specific)

2. Homogenous Pattern
    A. Systemic Lupus Erythematosus (Very specific)
    B. Tests for Further evaluation
        1. Anti-dsDNA
        2. Anti-ssDNA
        3. Anti-Smith

3. Speckled Pattern
    A. Most common, least specific
    B. Disorders Indicated
         1. Systemic Lupus Erythematosus
         2. Mixed Connective Tissue Disease
         3. Scleroderma
         4. Sjogren's Syndrome
    C. Tests for Further evaluation
         1. Smith Antibody (Anti-Smith)
         2. Ribonucleoprotein Antibody (Anti-RNP)
         3. Scl-70 kD kinetochore (Anti-Topoisomerase I)
         4. Anti-La (Anti-SSB)

4. Nucleolar Pattern
    A. Disorders
         1. Scleroderma
         2. CREST syndrome
    B. Further evaluation
        1. Scl-70 kD kinetochore (Anti-Topoisomerase I)
        2. PM-1

5. Diffuse Pattern
    A. Non-specific pattern

6. Centromere Pattern
    A. Seen in PSS with CREST syndrome

 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 6/23/2007 2:09 PM (GMT -6)   
Babs, I thought I had seen everything there was to see about lupus, but this is the first time I've ever seen the ANA results broken down this way. It's great! Thanks
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/23/2007 6:41 PM (GMT -6)   
Hi Steph, I'd also like to welcome you. I'm sorry you have had so many problems and I hope docs are able to get them under control enough for you to have a safe pregnancy. In addition to what others have said, I guess I would be concerned about the rapid weight gain. Are you retaining any fluid or swollen anywhere? I'm wondering if anyone has checked your urine lately to check for protein. I know that sometimes kidney issues can cause some swelling, especially in the feet, ankles, and legs, but I don't know if you have any of that going on.

Please ask any questions you have and we are also here if you need support on a bad day.

Take care and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 6/23/2007 8:51 PM (GMT -6)   
Hi Steph, welcome to the group. I'm sorry you are going thru all this. I do have the same Nucleolar ANA possitve. every time they take it it stays at 1:2560. I am on b12 vitamins because my b12 is low also. Anyway I just wanted to say hi and I hope you read the links on here and ask tons of questions.

Again welcome
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

New Member

Date Joined Jun 2007
Total Posts : 13
   Posted 6/23/2007 9:16 PM (GMT -6)   
I appreciate what everyone has to say. I have been checked upside down and inside out. I've had CAT scans, MRIs, urine analysis, blood work for all kinds of things that I have lost track. The outcome of what they have found are the disorders I've been diagnosed with: hashimotos, pernicious anemia, and the UCTD. I've been told that if the UCTD can stay the way that it is forever or it can turn into something more serious as time goes on. I can't take B-12 pills, because I don't have any intrinsic factor and cannot absorb B-12 anymore- hence the shots. I started off one a day for a week, then one a week for a month and now I'm on one a month forever. My husband gives them to me. I guess I am just overwhelmed. I do feel that I am lucky and it could be a lot worse. I'm just a bit confused. I don't know what to expect, I don't know what's "normal" anymore. When all of this first started I described it as being 29 in a 90 year old body. Everything hurt and all I wanted to do was crawl into a ball and disappear. It has gotten better, but at times I still feel like my body is 90. I feel like I've lost my spunk- if that makes any sense. Is this what I should expect?
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