Posted 6/23/2007 9:04 PM (GMT -6)
Hi hurtinmom, I'm so sorry this is happening to you. I think all of us understand the fear that goes along with these disease. It's overwhelming. I think the first doctor that saw you was an absolute quack! I understand why the ER did those test. My legs swell up also. from my klnees to my toes. So bad I can't put my shoes on. The feet stretched so bad so fast that they bled. I also have had congestive heart failure from the fluids building up. I have bad lung problems. So they watch for the stuff so they fluid doesn't build up in the lungs and around the heart. Which is what CHF is. It's not actually heart failure. Anyway now they I have scared ya half to death. I have had lung problems for years and I'm actually doing pretty good. except for the lousey weather and humidity. That can also make it hard for you to breath. This is a tough time of year for lungs.

Anyway welcome again
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 

Posted 6/25/2007 1:12 AM (GMT -6)
Hurtinmom, I'm so glad you found this forum because I think there a lot of wonderful people here who'll be able to give you moral support and encouragement as well as information. It has become my home away from home.

44 years ago I was a skinny healthy 14 year old and my left foot swelled to over twice it's size. It was so painful to the touch that I refused to put any weight on my heel, and my mother put a cardboard box under the sheet on my bed so that the sheets wouldn't touch my foot. I eventually had exploratory surgery. The doctors found nothing but sent inflammed tissue to the Mayo Clinic and they also found nothing. It went away on it's own. When I mentioned this to my current rheumy, she shook her head and said, "you've probably had lupus all your life." Sometimes it takes years for doctors to make diagnoses. It's unfortunate and extremely frustrating.

I'm so sorry you're having so many problems and I do understand how scared you are. If it's any consolation, I can deal with my diseases better now that I know what they are than I could prior to my diagnosis.

We will be here for you, hurtin, and we do understand what you're going through. I hope you'll stay in touch with us and let us know how you're doing. This is a wonderful family that helps keep me sane.

I hope this next week is a happy one for you.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 6/25/2007 1:16 AM (GMT -6)
Hurtin, this just triggered another memory. When I was in college and after I got out, I walked a lot and I can remember at least three times that my feet swelled so much that I couldn't walk. It didn't occur to me to go to a doctor so I did nothing. At one point I was backpacking for three months and walked myself silly. When my feet would swell, I'd take a day or two off from walking and they would get back to normal. They haven't swollen up like that since. I'll never know what the cause was, but I have my suspicions, as does my rheumy. The good news is that whatever I had has disappeared for over 35 years.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 10/3/2007 2:37 AM (GMT -6)
PattyLatty, I noticed you take 6mg. lunesta/day. So do I. However, the doctor will not prescribe more than 3 mg., so a 30-day prescription lasts 15 days, and on other days either I dont sleep or sometimes the doctor will supplement by prescription with Lunesta samples. Are you prescribed 6mg. a day of Lunesta or are you in a situation like mine. Thanks
Posted 10/3/2007 3:22 AM (GMT -6)
Hi RL . . . welcome to the forum.

Most of us on this forum have either Lupus or a Lupus-like condition. Hopefully Patty will see your post and respond.

When you see medications listed in our signature, it just shows what that person was prescribed and is taking. It is not a recommendation to others. Question: I wonder why your doctor will only prescirbe 3 mg/day, but he will supplement that with samples?? Does he think you are taking the samples 3mg per day too? I'm sorry you are having such trouble sleeping . . . I certainly know how frustrating that is.

Anyway . . . welcome to the forum.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Posted 10/3/2007 9:22 AM (GMT -6)
RLChronic,

Oops, I made a mistake in my profile and need to correct it. I take 3 mg of Lunesta, not 6. Sorry for the error. I also take 1200 mg of neurontin for restless leg and that, in combination with the lunesta helps me sleep. However, I still have a lot of trouble getting to sleep and I wake up several times at night. I have a C-Pap which I don't use but I believe that if I were to use it again it would help me sleep.

I had a sleep study done about a year ago and the sleep doctor prescribed both meds and the c-pap. I believe that the prednisone causes my sleep to be disrupted.

Have you discussed your problem in detail with your doctor?

By the way, welcome to the forum. Let us know more about you.

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

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