Thankful for my new friends on this forum

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jun 2007
Total Posts : 64
   Posted 6/23/2007 7:36 AM (GMT -6)   
This is a wonderful for the first time in awhile I do not feel alone...And I have gotten such good advice on how to handle my 1st rhemotolist appt .I am new at this so to newcomers I wish to say you have found a safe place to face whatever. these people are wonderful and you will find love and understanding like you never imagined....

I need friends a couple of months ago we moved from Washington State to Greenville, Texas what a change but my husband has family here and we had no family in Washington and Washington is so expensive to live and we are both on disability Texas is much better for us .I read the posts a couple times a day makes me feel connected so between you guys and my al-anon meetings I am reaching out and finding acceptance and love...

I am trying to stay positive if I do have Lupus or whatever I want to stay in control....but sometimes the chronic pain and diabetes , and being bi-polar, chronic depression and being married to an alcoholic who is in recovery today is 26 days without a drink Everyday I rejoice ! He has a bad heart and if his life change he won't live long and I really need he have only been married going on 4 years I married late I am 47 now, he is 50 and when he is not drinking he is the most compassionate man I have ever known ..So right now between his recovery from surgery and me and my many symptoms and pain we make quite a pair.

Thank you for letting me ramble. I hope you all are doing ok and have a great weekend

God's richest Blessings to all of you.....


Regular Member

Date Joined Jan 2007
Total Posts : 279
   Posted 6/23/2007 8:55 AM (GMT -6)   

Sorry I wasn't around to greet you. I was touched by your note to Carol (Okie). She is one of the many wonderful folks here. I've been busy (having to deal with my bi-polar Brother who was living with me but has been placed in a mental facility) so don't check in as often these days.

I hope your move to Texas works out for you and your husband. You have so many things to deal with! Everyone here is fantastically supportive (as you have found out) so keep in touch.

Stay Strong,
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 6/23/2007 9:01 AM (GMT -6)   
Hi Sheryl and Sue, I just wanted to add I couldn't get thru this without all of my friends on here. Sue I did reply to your last email. I hope things are getting better for you. I know it must have been so hard to go thru this stuff with your brother. Sheryl I'm praying your hubbies results come back benign. That would be a blessing.
well I gotta go take my meds. yucko!
love ya all
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

Veteran Member

Date Joined Jul 2006
Total Posts : 831
   Posted 6/23/2007 9:16 AM (GMT -6)   
Welcome to our group. The people on here are great. This to me is a great plae to aks questions or to vent or even just to let your hair down and feel like you belong in this crazy messed up world that no one else understands what we go through.

I hope my words are spelt right I'm having a hard time woth my eyes today.


Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 6/23/2007 5:00 PM (GMT -6)   
Hi Sheryl,
   Welcome to the forum. You have found a great group of people here. They have helped me through some rough times. They are awsome!
  It sounds like you have your plate full and then some...((Hugs)). Know that we are here for you and will help you in anyway possible. Please hang in there and take care of yourself during all this. Updated us when you can. You and your hubby will be in my thoughts and prayers.
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/23/2007 6:33 PM (GMT -6)   
Sheryl, I am also so glad you found us. When I first got sick I looked at a couple of forums, but there was just something special about this one. THe people here are so wonderful, helpful and supportive. I honestly don't know how I would have handles all of the curveballs this disease has thrown at me without all of the wonderful people here. When I first came here I was like you and was in diagnosis limbo and the help and advice and encouragement I got finally helped me get to the right rheumy so that I eventually got a diagnosis and better meds.

Have you found out anything about your husband's prostate? Hopefully it will be good news.

Sue, it's good to see you here again - I've been thinking about you and wondered if you had been flaring. I had forgotten that your brother had moved in. I imagine that takes a lot of your time and energy. I hope you are taking care of yourself too.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



Please allow HealingWell to continue helping others by donating:


Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 6/23/2007 9:42 PM (GMT -6)   
Sheryl, I too am so happy that you're here and that you already feel right at home with all these wonderful folks. I rarely get out and get pretty lonesome, so in addition to the moral support and the broad shoulders to cry on, I can't imagine what I ever did without my friends here. Until I found this forum, the hardest part of my illness was the feeling of aloneness I felt because no one else really knows what you're going through.

You are struggling with so many problems. I applaud your hubby and you can tell him I said so! My stepson just completed 7 months of sobriety, and my stepdaughter got her 9 year pin in April.

I hope your adjustment to Texas goes well and that your hubby's biopsy results come back negative. Hopefully you'll soon find out what's going on with you.

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, August 17, 2018 7:30 PM (GMT -6)
There are a total of 2,993,884 posts in 328,086 threads.
View Active Threads

Who's Online
This forum has 161250 registered members. Please welcome our newest member, adjar.
284 Guest(s), 9 Registered Member(s) are currently online.  Details
Michael_T, sebreg, Stan1961, Jaybee&GG, WalkingbyFaith, OriolCarol, kit49, MacroMan, Steve Smith