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Regular Member

Date Joined Jul 2006
Total Posts : 245
   Posted 6/26/2007 6:35 PM (GMT -6)   
So much for begging for hysterectomy this wk. I called pcp & asked him if hysterectomy would help, all he could tell me was speak to gyno-c. He wants me to have colonoscopy first, then if everything looks good he will do one. I don't know about anyone else but I'm going broke! So much for insurance, I'd be better off on medicaid. I don't understand why they don't just put someone in the hospital & run what tests they need & then fix it! The good news is I do feel a little better, I still have the pain around ribcage & back & small twinges in my ovary. I think the next time I get in a situation like the past several days I'm taking myself to the hospital & not leaving until I get to see my doc. Do you think that would work? ( they would probably call security!)     I have been so desperate this week that I even bummed me some vicoden. No I did not take them but it was mighty tempting! I guess it was just comforting to know that I did have them. This is pretty sad when they have a person dx'ed & they have to bum other peoples pain meds! This doesn't say much for medical practice!

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 6/26/2007 9:24 PM (GMT -6)   


  (((Hugs))) I'm sorry your going through all this. I feel the same way about having alot of tests done and having to pay so many different places. They should just admit us and do it all in one place and get it over with and have one bill instead of several.

   I hope you get some relief soon. I know your having a rough time. Please try to get some rest and take care. Update us when you can. You will be in my thoughts and prayers.


 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/27/2007 10:24 AM (GMT -6)   
bhkhh, I'm also sory you are having a rough time. I agree about the insurance stuff and all the tests. Not only is it a pain, but it gets expensive after a while. about the pain stuff, I'm a big advocate for pain management because I think people should be safely as comfortable as possible. I personally hate the anxious feeling of being in pain without anything to around to help with it. It's not a good feeling to worry about pain. Hang in there and take care.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 6/27/2007 4:52 PM (GMT -6)   
Hi bhkkkk--
Sorry to hear about your pain and all. I'm glad you are feeling better. I hope that all goes well with the gi. I had endometriosis, polycystic ovary, irritable bowel and diverticulosis and I had no clue what was hurting me when. They gave me one kind of pain pills for one thing and one for the other and told me if the one pills don't work, then it is the endo and take the other pills, and vice versa. I finally got a hystero after much suffering. If you really feel you need to go that route and you are done having kids, I can tell you that there has never been a day I didn't thank God I had it done. I didn't realize how little estrogen I was getting and that my ovaries were not functioning hardly till I went on estrodiol patch. It made me feel like a kid again, gave me energy and improved my health and skin and brain function. One thing docs don't like to tell you is that estrogen preserves brain cells. I've been very happy with it, though I was so scared and afraid that I would regret it--even thoughts of having a late child now that mine are all old--but that would have been such a bad decision. So I thank God for it and know that if you have to do it for pain (which I was begging for it) or whatever, it always a bad thing, it can be good, really good, make you feel so much better. I was in my mid thirties when I had it done. Just wanted to let you know how it worked out for me positively in case you have to go there. I hope you feel better soon.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Regular Member

Date Joined Jul 2006
Total Posts : 245
   Posted 6/27/2007 7:13 PM (GMT -6)   
thank you everyone. The gyno wants to make sure there is nothing else wrong with me because he said if I needed more than one surgery it could all be done at once. He did tell me it would take me longer to recover because I do have lupus. I never knew that. That may explain why the few surgerys I've had have been so hard to recover from. I just know I cannot live with this pain. It's good to hear a good hysterectomy story. I have my tubes tied anyway so it's not like I could have another baby, even if I could with all this I could not take care of one.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 6/27/2007 9:36 PM (GMT -6)   
Hi Bhkhhh:

I'm sorry to hear you're having so much pain. I hope that the doctors can figure out whats going on inside of you. I had a total hysterectomy in 1997 for my endo. The surgeon who did mine said that the amount of inflammation in my body cavity was totally unreal. The same was said when I had my colon surgery in 2005.

Yes, it can take longer to recover from surgeries when you have lupus. A lot of times, ppl flare when they have a surgery. I'm wishing you the best and I hope you get some relief soon.

Take Care,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

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