Methotrexate and new Rheumy

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Regular Member

Date Joined Oct 2006
Total Posts : 221
   Posted 6/26/2007 7:50 PM (GMT -6)   
I just saw my new rheumy (Dr. Adams) today... and I LOVE him!!!  He was so worth the four month wait. I cant believe that there is such a caring and THOROUGH doctor out there.  He answered all of my questions, and even some I didnt ask!  I was there for three hours getting bloodwork, xrays on my joints, and actually seeing him. He is starting me on methotrexate immediately and getting more bloodwork on the mastocytosis condition.
What can I expect with methotrexate?  The only real thing I can remember hearing is about the hair loss.  How long will I need to wait to get results and feel better?  Is this one that needs to build up in your system? He gave me a list of supplements to combat the hair loss.... Biotin, Folic Acid, etc...  Have these worked for any of you? I'm worried because I am already so much thinner on top because of the Lupus, I really dont want to lose anymore. sad
Thanks all for any info.

Mother of four, full time Systems Analyst
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
Meds:  Medrol injections; Darvocet as needed, Neurontin 100mg

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 6/26/2007 9:03 PM (GMT -6)   
   I'm glad you like Dr. Adams! I have heard alot of good things about him. Hopefully, he will have you feeling alot better soon.
  I took Mtx a few years ago and felt great while taking it, but it raised my liver ezymes and the doc took me off it. I didn't really have any other side effects from it. I hope it works well for you.
  Please keep us udpated and take care. You are in my thoughts and prayers.
                                                          ((hugs)) Babs
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Regular Member

Date Joined Oct 2006
Total Posts : 221
   Posted 6/27/2007 5:36 AM (GMT -6)   
Thanks, Babs!  I worry about the liver situation because I had slight liver damage from Topamax (for migraines) a few years ago.  I did heal, however I think that my liver is probably sensitive from that.  I will make sure to keep a close eye on the enzymes. Dr. Adams and I discussed quality of life, and I am so ready to get some of that back...  I have been so wary of side effects for so long so I rarely take the medications given to me, but this time I am going to try.
Mother of four, full time Systems Analyst
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
Meds:  Medrol injections; Darvocet as needed, Neurontin 100mg

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 6/27/2007 7:13 AM (GMT -6)   
Hi Victoria. I am glad that you were able to find a Rheumy who you like. I am jealous,lol.
I have been on Methotrexate for 2 years now and besides the hair loss I havne't really noticed any other side effects. I take Folic acid everyday to help with that. Although my hair falls out like crazy, (we find it everywhere including the fridge) it is growing like crazy too. Weird, but I have never had my hair as long as it is now. It would never grow before, now it doesn't stop. Which is good I guess because as I lose it it replaces itself.
I was on the Metho for a long time before I could say that i noticed a difference. Now my Rheumie is weaning me off of it to see how my body responds to not having it in my system. The first little while after i dropped two pills every week was rough. Hopefully the next droppage will not be as bad.
Good luck and do take the meds that are prescribed for you, it is really for your own good!
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 6/27/2007 7:38 AM (GMT -6)   
Hi Victoria.  I've been on mtrx for about 8 months and it took a few months before I began to feel a difference.  Since being on mtrx I've had many days where I feel that my rheumy has given me my life back.  I've been having flares again lately and he added Imuran.  I hope you're treatment goes well!

Dx: SLE diagnosed in 2005, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/27/2007 10:12 AM (GMT -6)   
Victoria, I am so happy that you love your new rheumy. There's nothing like having a doctor that you really like and feel comfortable with. I know you were worried about switching rheumies and I'm so glad it worked out well. I don't have experience with mtx, so I can't help with that but I really hope it works for you and does give you a good quality of life. Like Connie said, I have heard people say the taking folic acid can help with some of the side effects of mtx.

Keep us updated when you get a chance about how it is working for you. I'm glad you are still stopping in during your "break".

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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