Been for my results

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Regular Member

Date Joined Aug 2006
Total Posts : 334
   Posted 6/29/2007 6:33 PM (GMT -6)   
Hi everyone.
I hope to be back here a little more often than of late.
I went to my GP to get the results of my liver function tests and she is sending me for a liver scan. Once that is done I will be seeing the liver specialist so until then I'll just keep my fingers crossed.
I had a fab break away with the family, daughter loved it and the weather was much hotter than I thought it would be, the rest of the country had torrential rain! So, too much sun, and suffering for it still. The rash got infected behind my ears and my whole body was burning but thankfully the new meds I got are working well for this. The only thing I've still got is horrific headaches which I seem to be plagued with lately. I was so unwell with it today I lay on the settee and fell asleep, and I was on my own with my daughter. I feel so guilty and keep thinking what could have happened to her with no one to supervise. Luckily she was just playing when I woke, but I hate this illness and I hate myself for being such a useless mother.
Just when you think things can't get any worse, they do big time.
My grandad (who was diagnosed with lung cancer a few months ago) has been told he has a tumour in his bowel which is getting removed Monday and a possible tumour in his salivary gland. So things aren't looking good for him. My husband found our next door neighbour dead on Monday, he was only 51 and his funeral is on Monday coming, my husbands quite traumatised by this and isn't sleeping well. And to top it all off my brother had a car crash yesterday. Thankfully he's not seriously hurt. His car is wrecked though and he's a taxi driver, so no car, no work. I am hoping this is the end of the bad news because I've honestly had enough.
Sorry about the long whine. x x

Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
Prednisoloe, 35mg

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 6/29/2007 6:55 PM (GMT -6)   
Oh goodness lion, I'm so sorry that all of this has happened to you and your family. I'm really sorry to here about your granddad. I will keep him in my thoughts.

Lion, You are not a useless mother. As far as falling asleep, yes I can understand how that was scary for you but you cannot beat yourself up over it. She is okay which is all that matters. I can't even imagine having to take care of a little one (mine is 13) and I admire you for that.

I hope your liver scan turns out okay. I'm so sorry that you are having headaches, they are the worse. I'm keeping you in my thoughts.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements

Regular Member

Date Joined Jan 2007
Total Posts : 279
   Posted 6/29/2007 7:39 PM (GMT -6)   

Oh, so many bad things happening. I feel for you so much! Glad you had a fab time away with the family. You are a fabulous Mother, really. We are all struggling so much, big time. Your daughter is fine and you had a scare but it is all OK.

You are in my thoughts, good energy coming your way.

Stay Strong,
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Paxil (10 mg, replaces Prozac), AmbeingCR (12.5mg)

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 6/29/2007 8:19 PM (GMT -6)   
(((((((lion))))))), we sure can beat ourselves up can't we? I can think back when my son was little. I wasn't the greatest parent in the world. and I wasn't sick. Fortunately we all survived. So quit kicking yourself. Trust me you are not the first parent that ever fell asleep while taking care of their kids.
As for all the other stuff. I'm so sorry you hubby had to go thru that. It might be good for him to speak to someone about what he is feeling. I'm glad your brother wasn't hurt. Hopfully he will get a car real soon and get back in business again.
Keep us updated about your test and try not to be so hard on yourself
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/30/2007 9:51 AM (GMT -6)   
Wow, lion, you have so much going on that I defintitely don't think you are whining. You and your family must feel overwhelmed with everything that is happening. I'm really sorry to hear about your neighbor and also to hear that your grandfather isn't doing well. It's so hard to make sense out of these kinds of things.

I'm also famous for beating myself up for the "mommy guilt" I feel and we need to try to stop doing that. It's very obvious from your all of your posts how much you love your daughter, so you are NOT a bad mom. Those kinds of things happen to even healthy moms.

I really hope you catch a break soon and that things start to look up for you. You deserve some good news for a change.

Take care and know that we are here for you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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