Posted 6/30/2007 10:54 PM (GMT -6)
bhkhhh, hippi, Valinda and Diane,

Thanks for your encouraging words; I will most definitely remember s-e-d-a-t-i-o-n! You can bet on it! The curious thing is that as of my last labs a couple of months ago, my liver enzymes were fine. These two lesions just accidentally showed up on the lung CT. The ultrasound shows one as a complex cyst and the other as a solid mass. So, next step is the biopsy. I will keep your positive words and prayers with me.

Hippi, my daughter and g.daughter are here. They are getting settled and so far, so good. I do have my little "oasis" set up--really works out well. Daughter is still unpacking and probably will be for another week or two. She can only get so much done while little one is napping. A 15 month old requires eyes on her practically every second! But I have to say, it is a joy. Hubby and I have decided that we are looking at this as a front row seat to getting to watch a grandbaby grow for a couple of years. What a special opportunity! Thanks for asking.

And again to all of you, thanks so much for your information and positive energy, thoughts and prayers.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Posted 7/1/2007 6:52 AM (GMT -6)
Hi Emmie,

First off, I want to add to the Hippi Happy Dance!, for having great results on the lung tests.

Sorry to hear about the lesions in your liver. Diane sounds like she has great advice.

Take Care. Let us know how it works out. In the meantime -- lots of energy coming your way from me.

Stay Strong,
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Paxil (10 mg, replaces Prozac), AmbeingCR (12.5mg)

Posted 7/1/2007 5:14 PM (GMT -6)
Emmi,

I also want to add yeah yeah yeah to the Happy Dance for Clear Lungs! No one knows how hard it is to quit smoking till they've done it themselves!

I'm sorry, though, to hear about the worries you're going through about the cyst and mass on your liver. You must be scared senseless and you can be sure that you're in my thoughts and prayers. Lots of healing energy is flowing your way. Do you know when you're going to have the biopsy? Please let us know.

You sound like a terrific mom and grandmother. Grandchildren are so much fun to have around, but they take a lot of energy and can tire you out, so I hope you don't get too fatigued having extra folks in the house, even though you're going to enjoy them so much. You're smart to have a quiet place to which you can escape whenever you need to. Use it!

I'll be thinking of you Emmi. Do keep us updated when you can.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 7/2/2007 3:36 PM (GMT -6)
Hi emmi--
Sorry I've been gone. My last liver biopsy was an ultrasound guided one and basically what they do is use a baby ultrasound thing as they insert the needle so they can get what they want. I've had four or five, sad I've lost count, liver biopsies. I'm so so so sorry to hear about what is going on with your liver. I've had fatty liver and inflammations but nothing like what you are describing. Lets hope that they are wrong, as we've found medical professionals can be, and it is something not bad, a shadow or something. I hope you get this in time. You must be awake and alert for a liver biopsy, because you will have to breath a certain way when they insert the needle. There is some risk, less with the ultrasound. I've found the docs that do them are good and the bad ones probably aren't allowed to do them, so it will go fast. I think the pain afterward is the worst and you will need to lie very still afterward for at least a day. I always took like three days off work and I laid still most of the time. I didn't lift my kids or anything because you want it to clot and heal. If doc says 8 hours, take at least a day. They have never gotten one and believe me you won't feel like doing a whole lot. Be a baby and get good pain meds for after, if you are hyper, make sure that you get them so you will lay still. Definitely have someone walk with you and be careful on the stairs. I fell after my last liver biopsy because I was impatient to get in the house and lay down and I darted from the car before anyone could help me and fell right on the biopsy site and it hurt really bad and I got sick and had to go to ER, though it was ok thank God. I mean the edge of the stair smacked right on it. Sorry, don't mean to gross you out. Anyway, I'm going to end this so you can get it. Not to change subject, but I had the same reaction to pred as you , I can't take it, not anymore. Anyway, you know I have hashis my TPOS was only 1000, but wondered if it was because of the hashis hypothyroid or the hashis encephalopathy that you have the problem. I had a post out for you but with all this going on. Emmi, I will pray for you that all the people who care for you and treat you are guided by God, that you will be ok and get through this and hopefully by some miracle that this is not as bad as it seems and all the bx are negative, or that for some reason, the scan is wrong. ((((hugs)))) now because you will have to be careful afterward. They will offer you a living will and all that and I did it, finally, the last time, but its a formality like when I had neck surgery. With the ultrasound, the risk is much lower because they can see where the needle goes. I had one in a medical college where the doc just tapped my side and the nurses were laughing and joking so loud he couldn't hear to do the biopsy and he did it really fast, he was good at it, I was sitting on a cold metal tx table in a not to clean room of a small medical college. I was really scared, but after the first one, I don't get too scared. They just hurt and they can't give you anything and don't look at the needle. If he's good you won't see it. If you can't tell, I'm really feeling for you emmi and I wish I could go with you and reassure you, I wish everyone was well. Liver things, the big thing the docs don't take seriously is how many meds they give us. You need to be careful of doses and if you really need it. Narcotics aren't so bad as non-narcotic pain stuff. If I can help in anyway, I will be around if you want to chat, or have more questions, let me know.


Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Post Edited (cured4real?) : 7/2/2007 3:39:33 PM (GMT-6)

Posted 7/2/2007 8:58 PM (GMT -6)
emmi, I just wanted to let you know I am thinking of you and hoping that things go well tomorrow. Whenever you are feeling up to it, let us know how things went.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Posted 7/3/2007 10:52 AM (GMT -6)
Hi emmi--
I hope you are ok and not hurting too much. Just letting you know I'm thinking of you and sending good thoughts your way.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 7/3/2007 11:22 AM (GMT -6)
Emmi,

I've been thinking of you this morning and hope things are going well with your biopsy. We're anxious to know how you're doing, and look forward to hearing from you when you're up to posting.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Posted 7/3/2007 11:53 AM (GMT -6)
Hi Emmi, sorry I haven't replied to your post earlier. I haven't been around much. I really hope the liver biopsy went okay for you. I'll keep my fingers crossed for some good results and hope your not hurting too much. Love & hugs x x
Chillblain Pattern LE, possible SLE, tachycardia, proctal fugax, anismus, slow transit constipation.
 
Prednisoloe, 35mg
Tramadol
diclofenick

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