I'm sorry that you are going through an ordeal with trying to figure out what's going on. I hope that these upcoming appts can give you some more concrete answers. Like Hippi said, a lot of people with Lupus also have Fibro so that may be it. I have heard many here state that its hard to tell the difference when their fibro or lupus is giving problems. Of course, the treatment for both seem to contradict so getting the right combo of meds is important. Please let us know how the appointments go.
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements