... I am new with all this and need support from people who know what I am going through. Here is a summary.
In February - went to the emergency room with allergic reaction to lisinopril - a medicine that I have been on since 1999 for HBP. So began the trial and error of trying other meds. Currently I am on DynaCr and laxis (sp?)
Later in Feb started to have swelling in my left ankle and foot. Seemed to get better than started back. Just left side. Some days worse than others. Than my hips started to ache. I am only 48 but when I get out of bed in the morning I sometimes feel like I am 80!
In May, had a mysterious (at the time) rash appear on my face. Did not itch and I didn't do anything at first. But after two weeks decided to go to my doctor who is an internist. With all these various syptoms she ran some blood tests for ANA,ESR, RA and all came back negative. She sent me to get a venous dopplar on my left leg. No clotting. She sent me to a dermatologist for my face and the dermatologist did a biopsy meanwhile she prescribed Cutivate lotion and Oracea. Came back a week later and the biopsy confirmed that I had skin lupus. The doctors conferred with each other and I have an appointment now with a rhuematologist. That appointment isn't until August 24th.
At this point all I know is that I have skin lupus. The medicines seem to be working in clearing up the lesions on my face. It is still a mystery on the swelling and joint pain.
So this is where I am right now. I have read a lot on the lupus foundation site and even bought a book called Living with Lupus, the first year. However, the book and articles seem to focus more on the systemic lupus.
Any feedback would be great! And I will keep the board posted on updates.
Thanks for reading.