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Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 7/9/2007 8:53 PM (GMT -6)   
Hi Everyone:

Sorry I've not been around much lately. I've been reading the posts, just haven't really been up to answering any of them lately.

As most of you know, we're moving and it's this week. We've got tons of stuff to finish prior to the movers coming in and packing everything. They'll be here Wed, Thur, and Fri. I'll be unable to access the site until probably Tues next week. My mother in law will arrive tomorrow and she'll be here until the 17th to help unpack and put stuff away. She'll also do any cleaning that's necessary, whether it's at the new house, or the one we're leaving. Nikita's room is painted purple so it needs to be repainted.

Of course, I'm not feeling well at all. I've got sores all over my gums, tongue, roof of my mouth. My white count is up, and my incision is open. It opened up 24 hrs after the staples were removed. So I'm packing the wound with aquacell every three days. I've got a whole about 1" long by about 2" deep in my chest. It's sore and doesn't seem to want to close at all. I'll see the surgeon again on Friday the 13th. Needless to say, no lifting or moving stuff for me. This truly is going to be a test on my nerves. I can't stand living out of boxes, and my home not being settled with curtains and photos up. Anyway, I just wanted to pass on the update. Don't look to see me after tomorrow evening until probably next Tues or Weds.

I hope you all have a great evening and a good rest of the week. Love you all lots and I'll see you next week.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 7/9/2007 9:26 PM (GMT -6)   

Hi Barb, I was thinking about you today but I didn't want to ask how you were. I was afraid you were so busy with the moving that I'd bother you. But trust that you are always on my heart and in my prayers. I'm glad you have someone willing to help with the move. Man I feel sorry for ya. I'm still living in boxes and it's been a year. I did put some pictures on the walls finally but none of the family photo's. Just count to 10 alot. On the other hand I am so excited for you. This is going to be a new chapter in your life. I know it will be scarey but you are strong and you will do just fine. It may be the best thing that ever happened to you. Boy that wound sound pretty nasty. I hope it isn't getting infected. That's all you need. Thank you for the update. I'm sure I would have been on here asking where you were any day now. I hope it doesn't take long to get your puter up and running.

You take care of yourself and let us know when you can. I'm sure you have people you can call on here that will give us an update if you don't get the puter going right away.

lots of love and prayers


God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 7/9/2007 10:04 PM (GMT -6)   
Hi, Barb,

I'll be thinking of you during this move. Its sure to be hard on you and all I can say is that I hope you don't do too much because you know just where it will send you. And to think that you're going into this not feeling well. I think any move is difficult to say the least. Even if someone else is doing most of the packing and the cleaning, there are so many decisions to make and organizing to do. I'm like you, and don't live living around chaos, and boxes signify chaos to me. Just take the time to take some deep breaths and sit and rest whenever you can. I'll be anxious to hear how the moves go and will be looking for your posts next week.

Lots of love and many hugs,

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined Jan 2007
Total Posts : 279
   Posted 7/10/2007 12:20 PM (GMT -6)   
Hi Barb,

Good luck to you. Lots of positive thoughts and energy coming your way from me. Nikita and the purple room made me smile (as that is the color of the walls and the rug in my daughters room). I say, don't paint it. Anyone moving in with a daughter will just have to paint it purple again.

I know you will stand up to the move both physically and mentally as you are a strong woman and we are all cheering for you.

*hugs and love*
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Paxil (10 mg, replaces Prozac), AmbeingCR (12.5mg)

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 7/10/2007 1:08 PM (GMT -6)   
Barb, thanks for giving us an update. You have so many people here who care about you and worry about you, so we always like to hear from you. You will definitely be in my thoughts and prayers during your move. Moving is hard enough on healthy people, so please don't overdo it during the move and take your time unpacking. I hope that having your M-I-L with you will be helpful and won't add to the stress.

We'll look forward to hearing from you after you are settled.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined May 2006
Total Posts : 236
   Posted 7/10/2007 2:24 PM (GMT -6)   
Hey, there you are! Glad to see you are hanging in there and very happy that you are getting some extra help. Thank the mother-in-law for us, it is very kind of her. Sorry to hear about the gape in your chest, make sure to watch your temperature and for possible infections. I get those sores in my mouth and throat when I get infections sometimes. They are uncomfortable. Did the doc say why the high white count? Perhaps healing in your chest. I hope it heals soon. Takes forever for me too. Boooo...

Try and let things ride. I'm sure you will be fine, but not the time to push it. Ah yes, that dreaded patience. Virtues are over-rated sometimes. Can't say it is my best either. I usually just close my eyes and repeat over and over that "this will pass" and after the tenth one I smile at how retarded I sound and why am I so worried about it in the first place. Moving is a life changing event, but not the end of the world. Plenty of time to torture yourself later I say.

Can't wait to see how you make out on Friday the 13th (my good luck day!) and your move - See you soon! PRAYERS & HUGS ! - Kristin
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 7/12/2007 11:19 PM (GMT -6)   
  ((((Hugs)))) I know this move is going to be hard on you sweetie. I hope it goes alot smoother than your thinking it will. Since your MIL is very healthy I'm sure she will get alot of things done and will have Bill and Nikita working hard too.... :-) .
  You just sit back and point to where you want your things and let them do all the work. You may not have your internet service by now, but I did want to post anyway.
   I'm sorry to hear your having such a hard time with the port and the sores in your mouth. I hope the doctor can do something for you tomorrow. Hang in there and take care of yourself. You are in my thoughts and prayers.
                                          Lots of love and hugs, Babs
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 7/13/2007 7:04 AM (GMT -6)   
Ohh Barb you sound like you have way to much on your plate right now. I hope you continue to heal and that you can get settled in your new house as easily as possible. Good luck and don't overdo it if at all possible.
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Regular Member

Date Joined Mar 2007
Total Posts : 153
   Posted 7/13/2007 11:13 AM (GMT -6)   
Barb I am so sorry that your not healing well. I know how that is. After my major abdominal surgery (incision from two inches above belly to pubic bone) I had continued bleeding from a surface vessel. It kept the wound from healing. I had to have the staples removed and to open up wash out and pack the whole thing twice a day. WHAT A GIANT PAIN!

I was more disgusted with that than with the whole surgery.

You are in my thoughts and prayers every day and night.

Does your Rheumy have you taking Folic acid for the mouth sores? Probably but just thought I would check.

Love and Prayers
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 7/13/2007 12:08 PM (GMT -6)   
Hi Barb.  Every day seems like a trial for you and I'm so sorry.  I've moved many times, but since lupus I really can't stand the thought.  The chaos really upsets me.  Try to get some rest (the operative word is try)!  Love ya Sis.

Dx: SLE diagnosed in 2005, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/13/2007 4:44 PM (GMT -6)   

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 7/14/2007 6:21 PM (GMT -6)   
   I hope your move went well and things are getting put into place for you....((Hugs)). Rest and take care. You and the family are in my thoughts and prayers.
                                              Love and hugs, Babs
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 7/14/2007 7:02 PM (GMT -6)   
Barb, I know this is a tough weekend for you and I hope it's not pushing you over the edge. Hopefully your MIL, Bill and Nikita are able to do most of the work so that you won't get worse than you already are. My son and his wife just moved and all I did to help was to put shelf paper in their kitchen and it just about did me in.

We're all thinking of you and will be waiting to hear how your move went. I hope you love your new place and that you get settled in real soon. And take time to rest!


Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2006
Total Posts : 708
   Posted 7/14/2007 8:03 PM (GMT -6)   
Barb, I hope your move went smoothly and that you are not too exhausted and sick from the moving and unpacking, etc.  Hope you love the new house.  Thinking about you and hope you are feeling alright.

Diane (ocean1)
Muscle disorder 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra and Zantac; Lunesta, and Ultram PRN.

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 7/16/2007 9:02 AM (GMT -6)   

I just wanted to check in with you and see if you are feeling better hopefully today. You are in my thoughts.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 7/16/2007 10:04 PM (GMT -6)   
Hi Barb, hope your move went ok and you did not do too much. I know you are probably very tired and busy and stressed. Just wanted to let you know I was thinking of you and wishing you well.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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