Well my hubby moved to Phoenix, so I am more on my own than ever. Also alot is going on and I am on retreat. I don't get much break time from retreat but I am posting to vent about all going on. I have to get ultrasound of abdomen Thursday for gallbladder, spleen, pancreas and liver.
Endocrinologist -vitamin D deficiency for sure, and he is checking for other things
Hematologist/Oncologist-Porphyria, anemia in liver ferritin,
Primary Care-make sure pain levels are ok, etc
Cardiologist-follow up with heart murmur, history of sinus tachycardia, adrenaline levels, etc
Allergy/Asthma-airborne reaction to shrimp, need epi-pen now and recheck for allergies to food and environmental.
Awaiting to hear from neuro to check for random muscle contractions/spasms to recheck for ms, if dystonia, migraines, and neuropathy.
I think that covers it. I am glad I am on retreat this week because next few weeks will be rough. I have managed some fun/relaxing time in there somewhere, along with a concert.
I am sure to be worst from testing and so sick of all this but what can you do but go to get better.
I know others have mentioned passing me around for $$$$ but I know with all I have, they also try not to run tests if not needed because of how bad it does affect me. I am just sick of this and I hope they find the rest of what is needed to help me move forward with remission. Thanks for listening, sorry to complain. Back off to meditation, break is over.
I hope you all feel better soon.
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescription 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.