Hi ladies....thanks for reading my post!!! Right now I'm on a low 5 mg a day. I always have to stay on between 5 and 10 mg. a day cause I tend to flare with anything less.
When I was first diagnosed, I was put on 80mg a day. Had to stay on that for awhile then gradually decrease.
Also was given plaquenel (had to come off after 6 mo.) and imuran. When I flare..they usually have to jack it up to 60 to 80 mg. all over again till it quiets down.So I've been on high doses off and on over the years.
The lupus tore my kidneys up bad from the get go!!! And by the time I was 17, I developed aseptic necrosis of both hips. So , that was the beginning of hip after hip plus the carpel lunate in wrist fell apart!!!
In my early 30's my doc weened me off steroids because of all this bone damage and I was in a good remission.I did ok for about 18 mo. but then here it came...big time flare.
So in short, we have come to realize I will always have to take at least low dose prednisone in spite of what its done to my bones..because I flare if the dose is too low.
Last urine I had I was spilling 4+ grams of protien and blood in urine. I go back to doc on 30th.
Anyway...my joints and kidneys have given me the most problems and the pain I have daily in joints can grate on my nerves!!!
I've always wondered what happened with me and having to have all these joint replacements???
Buy hey...it could be worse!!! Thanks all for your caring words and kindness!!!!