Diagnosis Update...FINALLY!

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New Member

Date Joined May 2007
Total Posts : 8
   Posted 7/13/2007 9:21 AM (GMT -6)   
Hello all,

I was finally able to get all my blood work from my Rheumy and the diagnosis is ::drumroll::

Primary Sjogren's

So I "only" have Sjogren's. A bit of relief, but I kept asking him, "So I don't have Lupus?" and he said he couldn't say that. So I'm just in monitoring mode. I go back in another 6 weeks. I declined any medications since I'm trying to get in a baby-way.

I think it is funny, people think I have some sort of Japanese restaurant-related illness. I just describe it as the little cousin to Lupus. Related, but not the same.

Take care,


Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 7/13/2007 9:26 AM (GMT -6)   
Sarah, I'm glad you are getting some answers. I love the way you explain Sjogren's as a cousin to lupus. It really does have a lot of the same symptoms. Like your doc said, you may also have lupus and time will probably tell whether you have it or not.

Good luck with trying to get pregnant. From what I have read, some women with autoimmune diseases actually feel better while they are pregnant (something to do with hormones) but then they can crash after giving birth.

Keep us updated on how you are doing and we'd love to hear if the stork is going to be making a visit.

Take good care of yourself :)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 7/14/2007 6:08 PM (GMT -6)   
  I'm also glad to hear your getting some answers now and I wish you the best on getting pregnant. Keep us updated and take care. You will be in my thoughts and prayers.
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 7/14/2007 7:14 PM (GMT -6)   
Sarah, I know how great it is to finally get a diagnosis. You sound happy and I hope that you'll soon be posting to tell us that you're expecting a happy little bundle. I'll be thinking of you.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

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