Posted 7/18/2007 11:41 AM (GMT -7)
Feeling better today -- a tiny bit of spinning, but less than yesterday. Pampering myself (ie NOT doing laundry or errands!) Lynnwood, Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 7/18/2007 1:10 PM (GMT -7)
Lynn,

The one time I had vertigo exactly as you described to begin with (turn over in bed and the room kept going) was before my one and only major flare. The flare lasted weeks and was devastating. Please, please, take it easy and consult your doctor.

Stay Strong,
*hugs*
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg), Imuran (2X50mg), Prilosec (20mg), AmbeingCR (12.5mg some nights)

Posted 7/18/2007 1:28 PM (GMT -7)
Thanks, Sue, I will keep that in mind and take it easy for the next few days. Lynnwood, Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 7/18/2007 5:26 PM (GMT -7)
ok, temp just spiked to 100 degrees, and I'm usually a 97.5....and dizzier.....guess i'll either up my pred a touch or find my PCP tomorrow.... Lynnwood, Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 7/18/2007 5:45 PM (GMT -7)

The first few months after being diagnosed I was very dizzy.  It is a hard feeling to describe... it wasnt dizzy like the room was spinning but more a feeling of being off balance and feeling like my head was heavy.  I am sure that sounds absurd but I dont know how else to describe it.  Now that my Plaq. has kicked in I hardly ever experience that feeling and if I do it is near my monthly cycle. 

A few years ago I was so dizzy (this was long before lupus) I was sure I had a brain tumor.  I went to my primary dr. and he said I has so much fluid in my ear he was amazed I could stand up.  Might be something to check out just to be sure.  When I had that infection I never even had a slight earache despite the fluid. 

Hope you feel better!

Posted 7/18/2007 6:35 PM (GMT -7)
Lynnwood, if it is an infection it would all make sense. And ear infections are usuallly easily treatable. Hope your fever goes down and that you're PCP's available tomorrow.

Take care
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

Posted 7/19/2007 6:44 AM (GMT -7)
Lynn,

I hope you are not getting the flu or an infection like the others mentioned. When I'm starting the get sick like this dizziness and lightheadidness are my first signs. If this is the case, I hope you get better soon. Please rest and don't worry about us, take care of yourself first. Let us know how it goes at your doc appt.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


https://www.healingwell.com/donate

Posted 7/20/2007 11:35 PM (GMT -7)

I hope you are feeling better. I also have bouts of dizziness on and off and I am sure it is lupus related. Mine usually resolves itself in a few days. Let us know how you are when you get the chance, I know how nauseating dizziness can be.

Sandy


DX: Kidney Disease, questionable Lupus Nephritis 2002
DX: Raynaud's Phenomenon and Lupus 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, lasix, klor-con

Posted 7/21/2007 7:11 AM (GMT -7)
Lynnwood, I really hope you aren't flaring. You are like me with your normal temperature, so a fever of 100 is prett high. I hope you got in touch with your doc and that you are taking it easy and taking good care of yourself. Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums
Posted 7/21/2007 8:34 AM (GMT -7)
I seem to be okay most of the day, just start getting a little dizzy (in spells) from about 6 pm on. No more temperature spikes. So I'm guessing its the lupus doing a random attack -- my hearing seems ok, too. I'm trying to take it easy for a few days and wait for it to pass.... thanks hippimom, you are right, 100 is really high for me. I can't even remember the last time I saw 100! But it was just that one evening, so..... Lynnwood, Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 7/21/2007 8:46 AM (GMT -7)
Lynwood, I'm so sorry you're still having trouble with this, and I agree with you and Hippi. My normal temp is low too and when it gets up to 100 it really knocks me down. Taking it easy for a few days sounds like good medicine.

Hang in there.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

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