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Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 7/18/2007 12:37 PM (GMT -6)   
Hi Everyone.  Ever since my last serious flare (4 weeks ago?) I've been very confused reaching maximum fog.  I told my rheumy and he's referred me to a neurologist who I'll see Aug 7.  I've also developed weakness in my legs, but not my arms so I'm having EMGs Monday to make sure everything is firing.  Because of my confusion I find it difficult post not to mention difficult to function at work, so if you don't hear much from me I'm just hovering in the background. 
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac,  celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 7/18/2007 12:43 PM (GMT -6)   
Oh Donna, I'm so sorry. I know how frustrating and frightening this is. You feel like you're loosing your mind. I'm glad your doctor is getting you in to see someone though. I know lupus can effect your brain but so can depression and many other things. stress, too much on your plate. fatique. Try to stay possitive. and don't worry about posting. I know somtimes I'll set here and really want to reply and my mind just goes blank. Please at least come by and let us know how the tests are going.
love ya
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 7/18/2007 1:51 PM (GMT -6)   

I'm sorry you're feeling the fog right now. It can be very upsetting when the brain quits doing it's normal job. I have experienced it first-hand -- I was getting so confused I wasn't safe to drive and couldn't really carry on a conversation. Work and normal life were definitely out of the question.

My MRI didn't show anything, so I guess that's why I wasn't referred to a neurologist. Instead I was started on a course of Cellcept which has really been a miracle drug for me. My thinking is now back to about 85% normal -- I may never be able to resume my career at the same level, but I can function and think clearly.

I hope your fog is just part of a temporary flare and that things get back to normal soon -- I did have some periods like that before the cognitive dysfunction got really bad. Of course, if the fog and the leg weakness are related, that would be totally different than what's happened with me.

I hope your doctors are able to get to the bottom of things and get you appropriate (and productive) treatment soon,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Click: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 7/19/2007 9:29 AM (GMT -6)   
Donna, I'm really sorry to hear about what you have been going through. I'm glad you are going to a specialist to get things checked out. Please let us know how it goes when you are feeling up to it. We miss having you around here, but the most important thing is that you take care of yourself. I'm wondering if your rheumy can give you a release from work, at least until you have your appointment with the neurologist. The break might help a little. Hang in there and know that we are all thinking of you and wishing you the best.

Take good care of yourself.

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

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