You have really come to the right place. Since you have been here before, you must be aware that there are some pretty amazing folks here and they have become like family to me. If anyone needs compassion, it is you Judy, and I do hope you'll come here whenever you need to vent or just when you need an understanding ear. While my lupus is much milder than yours, by far, I do understand what it's like to be chronically ill and it helps me so much to come here and be among friends who know what I'm going through.
As far as hating prednisone, many of us are right there with you. It has changed so many things about me and although I've tapered down, I do better when I increase the dosage. It's a real tightrope that we walk.
Are you on a waiting list for a kidney transplant? I believe there are people here who have had transplants and hopefully they will share their experiences with you.
Hang in there and let us know how you're doing. We're here for you.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.
cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin