I am so sorry I have not been here to offer support to you all. I miss you all so much.
Things in my life keep getting more nuts and I am not sure whether to be greatful and unhappy, which I am both if that makes sense. So I will try to keep you all updated and try not to confuse anyone.
Last Wednesday I had ultrasound of gallbladder, pancreas, and liver and I am still awaiting results. I am sore.
Last Thursday-Saw new Hematologist, who is referring me to bigger specialist who handles rare blood disorders, they think I have something in my blood that is rare but not sure what. So I see this other guy Aug 29.
Today-Cardiologist-go in next monday for echo, and 24 hours halter monitor. I do have murmur that could turn into mitral valve prolapse.
Wednesday-Allergist/Asthma, probably need epi pen and reacting to everything now.
Thursday-Primary Doc for follow up,
Friday-Endocrinologist for Vit D deficiency follow up to see if body is absorbing Vitamin D
Still awaiting to see of appt with Neuro for dystonia, migraines, numbness on left side etc
Well, I think that covers it all for now, so as you can say, FRUSTRATION
And this does not include trying to finish moving and work part-time.
I will post more later, hope you all are well.
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescript
ion 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.