First I want to welcome you to the forum. It's a wonderful place to share information and support with folks who know what you're going through. I'm glad you're here.
I take CellCept and love it. It helped clear my brain fog and gave me much needed energy. Soon after I began taking it I felt better than I had in months. I was taking 2000mg per day. I hope your rheumy checks your labs monthly because it's especially important with this drug. After I had been on it for a while my bun and creatine levels went up and my rheumy suggested that she thought it was from the CellCept so she cut my dose in half, down to 1000 mg a day. I don't feel nearly as good at this level and am hoping that when I see her this Thursday she'll supplement it with another med so that I can get out of this latest flare.
Not everyone has that side effect, however, and I hope you don't have any negative effects from it. It had a pretty remarkable effect on how I felt. How do you feel now that you are on it? I'll be anxious to hear how you do when you increase it to 2000mg.
Take care and let us know more about you and your lupus.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.
cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin