Hi Darlene & Carol
Thanks for the input, Yes it has been a hard pill to swallow that I have gotten LPHS with no cure in sight, but then Lupus too, like c'mon when is enough, I know others have it alot harder then I do, but I still have not digested the fact that this LPHS is a life long thing with opiates for the rest of my life, I am 34 M,with 3 kids, - I get that to I usually sleep with both my arms over my head and I can no longer do that, it's like when I get them up there and comfy,they get that pins and needles thing going and I have to try a new position, Today I was up at the hospital with my son after approx 2.5 hr wait from sitting in the chair my legs were so red and kinda blotchy like blood in the veins, and so swollen my toes were hurting, so if there is no test to check for Lupus, how do they dx, by exclusion? or just symptoms..and just sitting here now with my feet up in the recliner my feet hurt sooo bad they feel really tight because they are so swollen...I will definetly keep you guys posted on what the Nephrologist has to say about all of this, Thanks for the info, very much appreciated :) ,,,and yep I would consider your Colon a major Organ too...does Lupus attack all or any organ, I am really not familiar with Lupus, I need to do some reading on it...
DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors