Raynaud's, PCOS & leg cramps

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janet s.
Regular Member

Date Joined Feb 2005
Total Posts : 67
   Posted 7/26/2007 9:22 PM (GMT -6)   
My daughter was diagnosed last year with Raynaud's (Primary) and this year she has been diagnosed with PCOS (Polycystic Ovary Syndrome). She is on a low estrogen BCP and for the summer went off her Raynaud's medicine which is a blood thinner.

For the past two days she has had bad foot cramps first in one foot and the next day in the other foot.

Do you think there is any connection with Raynaud's or PCOS and the foot cramps. I am thinking that she needs to go back on her Raynaud's blood thinner which will improve her circulation.

Any ideas or feedback would be so much appreciated. I hate having her call the dr. for every little thing even though she is in her 20s.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 7/26/2007 10:28 PM (GMT -6)   

Hi Janet, I have no idea about the blood thinner but it sounds like she may need to have some more blood work done. There are several things that can cause the cramps in the feet. It could be she is low on potassium or some other vitamins. Lupies don't always absorb vitamins like other people do. I think this would be a time when she should call the rheumy.

let us know



God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 7/29/2007 12:47 AM (GMT -6)   
Hi janet--
I don't know what meds your daughter is on, but my son takes an antiseizure drug trileptal that gives him cramps and numbness in his legs and feet when it wears off. I also had PCOS and had horrible groin pain and it shot down my legs and into my big and second toes. I think there is some connection pain wize, the nerves run from the groin down the legs into the feet. Maybe she has hurt her lower back lifting something and that is the problem. It would seem reasonable to contact her primary care and just let them know what is going on, they may want to do some tests or may be able to give her something to help her. In my experience, estrogen patches work better than the pills because my doc explained that when you take the estrogen pill, at first you are getting 8 times the dose you are supposed to be getting, and by the end of the day, you are getting less than half of what you need. The patch delivers a more even dose, and I would think with possible clotting issues, the patch would be a more even approach. I don't know if she's on it or not but just thought I'd let you know that in case that might be contributing. I hope she gets to the doc and feels better soon. I know what its like to worry, my son is 19 and I am alswys worried about him.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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