I am so sorry to hear about
your terrible rash. I had the same type of rash about
five years ago when I first started to become aware that I had lupus. It was awful and just as you describe. The doctors were not able to do much for me, either. Lynnwood gives some great suggestions but, mostly, I ended up just waiting it out. The only area that was not affected for me was my face, too, except that I had a definite butterfly rash. I also remember how I would develop big, raised red blotches on my skin when I would go into the sun - even when driving! The itching was the worst, however, and nothing much seemed to help with that.
At the time, my family doctor put me on a couple of pred dose packs, a steroid cream, and clarinex for the itching. He also sent me to a rhuemy but I had to wait five months to see her. By then the rash had mostly cleared up and I did not have enough of the lupus symptoms for a diagnosis. That came about
two years later. In retrospect, I think it would have helped if they had been more aggressive with the prednisone. Are you taking prednisone?
I remember that it really helped for me to stay out of the sun, to rest and sleep A LOT, and to take very cool showers. The cool water temp was very soothing.
I hope this helps and I hope your docs can help you very soon! I will keep you in my prayers!
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), Lodine, Methotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra, Flonase, and Patonel for Allergies.