Heidi, I wonder if what you describe could have been pleurisy. Many patients with rheumatic diseases, including lupus, get pleurisy. The NIH website is:www.nlm.nih.gov/medlineplus/ency/article/001371.htm
They describe the symptoms of pleurisy as:
"The main symptom of pleurisy is pain in the chest. Sometimes the pain may be felt in the shoulder.
Deep breathing, coughing, and chest movement makes the pain worse.
Pleurisy causes fluid to collect inside the lung area. This makes breathing difficult and may cause the following symptoms:
Shortness of breath
Rapid breathing (tachypnea)
I believe it's a good idea to discuss this with your rheumy. I hope you get to the bottom of it because you don't want to have to experience that awful hospital experience again. Hang in there and good luck.
Please let us know what happens.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin