Posted 7/31/2007 1:29 PM (GMT -6)
I have the same problems with my stomach and most of me meds have same side affects of problems with stomach. I did have those problems but more now with the Lupus and more when it is in a flair nothing helps at all. I also have the eating problem when all's I can eat is certain things. I myself think it could be linked to the Lupus. After all do the DRS. know everything about Lupus and it affects our digestive system. It makes sense to me.
 
Right now I am fighting a sty and I feel my body is really infected with this now. I am having problems seeing. I just tried to work with my Jewelry that I love to do so much and could not see to do it. I hope my eye sigh has not changed that much over night.  will just wait it out and see.
        Good luck I just think it is the Lupus.
 
                     

Lupus since 2005, MCT since 2005 polymysoitis since 2005,Arthritis since2005 sjogren's syndrome since 2005, vertigo since 2006,migrains since 2006, diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 

Posted 7/31/2007 2:52 PM (GMT -6)
Hippi, I was thinking IBS too when I saw Des mention it in her post. I have had that off and on although it's been years since I had a bout of it. My memory is that I'd alternate between bouts of diarrhea and constipation, but yours sounds different than that. When you say sick to your stomach, do you feel nauseous or does your stomach hurt? If you're having any constipation, that can be very painful. I think I'm just grasping at straws here. What OTC meds have you tried, if any? Mostly, I'm just hopeful that the lupus isn't attacking the lining of your stomach.

I wish I could help. Like Des said, you're in a major flare now, and so you have the stress of feeling so bad, raising kids who are home all day so you never have a real break, plus you're planning a vacation next week. That's a lot, hippi. I'd try to see or talk to a doctor before you go on vacation. I know that going to the doctor is a real chore because you feel so bad and all the docs are so far away from where you live, but I'd hate to think of you on vacation with your family feeling this bad.

Take care of yourself, hippi. I'm so worried about you because you just don't seem to be able to come out of this one. Rest, rest, and rest some more, dear hippi. And try a cup of real hot tea if you're having any allergies or seasonal headaches. That always seems to help.

I'm sending a HUGE bear hug your way,

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

Posted 7/31/2007 8:53 PM (GMT -6)
Thanks Des, Denise, and Pat. I can't figure this out either. I've had weird food cravings and aversions on and off since having lupus, but diarrhea for several days in a row is something new for me. Several years ago before I got lupus, I had some issues that my pcp thought might be IBS, but the issue resolved itself and I haven't had anything like that since then.

I also realized today that I have not been drinking nearly enough and I'm probably dehydrated which isn't helping me feel any better and I'm sure that having diarrhea has made me more prone to dehydration. Pat, you asked how my stomach felt and mostly it's a nausea kind of thing with some cramping when I'm about to get diarrhea.

These are the times I wish I had already found a new pcp. Honestly, I have no idea how to find another good one. I know of a few bad ones, but that doesn't help. Any ideas on how to find a good doc? Most people I know around here went to the same pcp I went to, so we are all trying to find someone new.

Actually a hot cup of tea does sound good and I think I have some around. I think I'll be off to bed soon and hopefully tomorrow will be a better day. Thanks again for the help and support.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 7/31/2007 11:38 PM (GMT -6)
Hi Hippi, I think we have been comparing the tummy thing and they seem to be on the same page but my cold cereal have been cinamon crisp flakes. I have been doing a little better the past couple of days but I going to town tomorrow and picking up some yogurt with the live cultures. I think between the extra steroids and the antibiotics I have completely wiped out my stomach enzymes. My son also told me to get fish oil and to take it with food. But like you I am still having lots of nausea and still plan on buying some more fudgecicles. Years ago the doctors that I had IBS too. (are you sure we weren't seperated at birth) tongue . but like you mine seemed to resolve itself. I'll let you know if I have any success with the yogurt and fish oil. I know fresh veggies (not cooked) are supposed to be good for your enzymes as well. But I just havn't been able to make myself eat it and I love fresh veg. normally.
Yes you diffinently need to keep up on the fluids especially with your diarrhea. Have you been running fever as well?
Take it easy and get some rest
love ya
carol 
 
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
 
When things are really dark look up. You can see the stars.
 
 
 

Posted 8/1/2007 10:30 PM (GMT -6)

Hippi,

Sorry to hear you are having problems too.  I have had severe epigastric pain for a long time now and noticed that certain foods make it worse (red sauce, ranch dressing, anything even slight spicy, nuts).  I had been tentatively diagnosed with IBS - constipation type years ago and it does flare up more when I think I am going into a lupus flare.  I also have food aversions now.  Can't eat fresh veggies and most of the food in my fridge that I buy thinking it looks good turns out to not be very appetizing when I think about eating it.  I am living on applesauce, cheese, yogurt and pudding a lot lately cause it seems like the only things that sound good.  I did find some Carnation Instant breakfast that is full of vitamins and have been drinking that each morning.  Seems to taste good.  I wish I could tell you that your stomach problems are IBS related but I also feel you should see a GI doc for some answers if this keeps up.  I have also been taking Tums to help with the nauseasness.

I hope you can find a new PCP.  My PCP I just started going to a couple months ago is absolutely wonderful and really listens and is truly a compassionate doctor but she is leaving so I am getting a new PCP (assigned by the insurance company).  Luckily, it is the PCP my parents both go to and they really seem to like her.  Guess I will find out soon.


Diane (ocean1)
________________________________________
Muscle disorder 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra and Zantac; Lunesta, and Ultram PRN.

Posted 8/1/2007 10:56 PM (GMT -6)
Hi hippi--
The sun is making me nauseaus and I've been having a long spell of diarrhea, but I have diverticulosis and IBS, so who knows. I do know that craving carbs can be related to sugar levels maybe due to pred. Also, some metabolic conditions related to the liver recommend a high carb diet and some liver problems (maybe gallbladder related too) can cause a problem digesting and metabolizing proteins. I'm lucky because even though I should only be able to eat carbs, which is terrible for my diabetes, I can eat a high protein diet due to where the damage is in my liver. I hate to sound like a broken record, but maybe time to have your liver enzymes tested and reevaluate doses of medicine. Are your stools light, greasy or fatty when they are somewhat firm? this can be a sign of liver problems, checking under your tongue for yellownness or in the whites of your eyes, really looking close can also be a sign, though I never ever get jaundiced, so its certainly not a requirement. Probiotic yogurts help alot, also maybe trying some baked salmon with orange juice, ginger, and a tiny bit of brown sugar on it might go down, if you like fish and get you the fish and the oils. I can eat that when I can't eat much else. For me, its something I live with, I know my liver is crap and I've got gi problems thanks to it. I've been eating a lot of soup lately and it's helped. You may also have a vitamin or digestive enzyme defiency. The probiotic yogurt, I like Breyers, is really good at straigtening me out. And I've heard fudgicles are the most healthy frozen treat because of all the quar gum in them, they are supposed to be pretty healthy. You may want to call about the liver tests though, they don't take the liver damage the medicines do to patients seriously because basically its not their problem, and you need the medicine. But sometimes, just lowering a dosage for a little while can get you back on track and prevent a vist to a hepatologist or worse. I've even heard doctors say that damage to the liver from meds doesn't matter because the liver heals, but they don't consider that you never stop taking some of these meds so it never has the chance. They also don't bother to change a dosage a little to find the optimal amount for each individual patient. I heard medication is dosed for a 200 lb man, so if you are 100lbs, you are taking twice as much as you might need maybe. I hope you feel better soon and I'm eating popsicles and soup and water and taking phenergren for the nausea, which goes away if I stay out of the sun for a day or two. Wishing you well and (((hugs)))
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 8/1/2007 11:47 PM (GMT -6)
I get stomach issues everynow and then too. Sometimes, it comes after I increase med or get a new one. So I'll blame it on that. But other times, I haven't changed anything and I'll have stomach issues for a few weeks so it's probably the lupus.

Have you tried eating yogurt? Sometimes I'll mix in dry cereal with the yogurt as well and it helps calm down my stomach especially since it has natural pro biotics in it.

Hope you feel better though, stomach issues are the worst because they can just come at anytime and I hate that feeling of having to rush to the bathroom a few times a day.
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:

Cellcept 250mg/5 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 7.5mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day

Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.

Rituxan infusions twice every six months

Posted 8/2/2007 7:33 AM (GMT -6)
Hippi, you have to eat better than cereal, oatmeal and sugary popsicles.
You're not helping your stomach by eating this. Oatmeal is actually good for you if you are able to tolerate oats. Maybe you're becoming allergic to gluten.
I know it's tough to eat when you feel like this, but you have to force yourself to eat something with more vitamins and protein.
I've suffered IBS for 20 yrs so I totally understand how bad you feel right now. The plaq did my stomach in, but you've been on it for a while and I wouldn't think it was the meds.
Someone here mentioned yogurt, which is great b/c of the bacteria (probiotics), but not good b/c of the dairy. Dairy is a huge no-no when you have diarrhea.
Have someone go buy you some digestive enzymes with a good oral version of a probiotic. These help me get over my sickness to food and my diarrhea every time.
Hope you feel better and drink a TON OF WATER!
 
Good luck
 
Jen
Posted 8/2/2007 10:24 AM (GMT -6)
knickers, thanks for reminding me about the candida - I hadn't even thought of that. One of our members, ginny, talked about taking some really good quality acidophilus pills that have helped her a lot. How can you check to see if you have candida overgrowth? I can't tollerate yogurt very well - it does something to me that makes me feel sick and makes my head feel weird and gives me just a general yucky feeling.

Jen, how can you tell if you are getting alergic to gluten? I'm not familiar with a lot of this and I'm also kind of scared to find out. I think it would be really hard to eat a gluten free diet. I'm trying hard to find some healthy things I can eat, but not having much luck. I was excited yesterday to find that I could eat watermelon and that it tasted so good to me and it didn't upset my stomach. I can also eat some fish, so I'll fix some tonight. I was a strict, die hard vegetarian for over 20 years, but within the last few months, my body has rebelled and I've ended up eating a few meat things here and there like fish.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 8/2/2007 10:26 AM (GMT -6)
I take a systemic anti-fungal every day since either lupus or some of my meds were causing vaginal, oral (thrush), and possibly stomach/esophageal Candida infections on a regular basis.

Nystatin is what my rheumy is using for me -- there are also other systemic anti fungals out there.

Research said...
Cutaneous, vaginal, mucosal and esophageal Candida infections usually respond well to treatment with nystatin. Cryptococcus is also sensitive to nystatin. Nystatin is often used as prophylaxis in patients who are at risk for fungal infections, such as AIDS patients with a low CD4+ count and patients receiving chemotherapy.

This may be something to consider if you are having mouth, vaginal, and stomach issues.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Posted 8/2/2007 7:00 PM (GMT -6)
knickers, you had me laughing out loud with the musical sound effects. I'm going to try the spit test and see what happens, that is if I have enough spit in the morning to do it. You've got my curiosity up about this.

Lynnwood, I didn't even think about taking a yeast med - that would be too obvious for me :). I think I'll check into the acidophilus pills too and hopefully find the good ones.

I tried some fish tonight and was able to eat just a little and then I couldn't stomach it anymore, so I had a fudgesicle. The watermelon is still tasting great to me, so I've had a lot of that today. Maybe if this is candida related and I get that treated I'll be able to eat more well balanced again.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 8/2/2007 7:49 PM (GMT -6)
I tried all the acidophilis & pro-biotic stuff before the med -- they might work for you (didn't for me) and it's always good to avoid more meds!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Posted 8/2/2007 8:42 PM (GMT -6)
Hi. Just one more thought to throw into the mix. Celiac or gluten intolerance. So many of my stomach-intestinal problems cleared up once I went gluten free. Also, some of my lupus symptoms even lessened! Hope you feel better!
Fran
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Meds: Plaquenil, Zyrtec, Prilosec, Nasacort, Prednisone, Prozac daily.
Meds: Epinephrine, Benadryl, albuterol (as needed).

Posted 8/2/2007 9:21 PM (GMT -6)
Hi Hippi:

I just wanted to pass on to you that you're in my prayers. I'm sorry you're having stomach issues. I certainly can relate to them with you. I swear in the 19 years I've had lupus I've never had normal bowel function.

As you know I don't eat much anymore, today all I've eaten is 3 cups of watermelon. Yesterday was just an apple, yes I know that's not good for a person, but it's the best I can do. I hope that you can get some acidophillis tabs and they begin to make you feel better.

You're in my prayers and keep us updated.

Love always,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Posted 8/3/2007 2:45 AM (GMT -6)
Hi hippi--
You might want to see the doc about this, you may have a bowel infection. I don't know if you have diverticulosis like me, but it sounds like the symptoms I get. Also, I've had diarrhea and nausea to the point of taking phenergen and it seems related to sun sensitivity. It's less bad on days I'm not in the sun. You might try some soups at least and get to the regular doc, or at least have them call in something. Usually some bactrim clears it up for me. If you havent been diagnosed for diverticulosis and/or IBS and you havent had a colonoscopy for a while, now might be a good time since you're already having the diarrhea and pain, cleaning yourself out for that procedure might make you feel better afterward and you can make sure there isn't something else going on. I was really surprised to find I had a polyp and it ended up being cancerous and Ididn't know, I have so many other gi problems. It's just good to check stuff out by now I think. Course, I'm a fine one to talk, I've been two months, but did have a bout withsome penicillin, and that always makes things worse afterward.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 8/3/2007 9:22 AM (GMT -6)
Thanks for all the thoughts and ideas about this. If it doesn't clear up soon, I'll see a doc about it. The diarrhea seems a little better- now it's just loose and I don't get the cramping anymore. Still struggling with the food aversions and I know I'll need to see someone about this since I'm sure I'm not getting the nutrition I need. Unfortunately I'm getting the calories though, so I haven't lost any weight. If I go to the doc I'm going to make sure to ask about the gluten thing, celiac, and candida.

I completely forgot to do the spit test this morning - I'm intrigued by it and curious to see what happens.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Posted 8/20/2007 9:17 AM (GMT -6)
Hippimom how are you feeling? I didnt realize when I posted this morning about my abdominal pain, that I would find this informative post.

Its just so darn hard to figure out what is wrong with us at any certain time isnt it?

Any symptom can be correctly or incorrectly blamed on Lupus!

I hope you are feeling better.

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

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