Jenisis: Welcome to the forum. Glad to hear you haven't met the criteria. Perhaps the doctors are just concerned due to some bloodwork abnormalities. They sometimes can go either way. Some will have Lupus or another connective disease and some will not. It is possible that you are borderline for the disease, and if it shows up at all, you may not have it for a couple of years. I started that way and from what I was told I could have Lupus later or not. Unfortunately, I do have it now. But it is 10 years after I was told I was borderline.
It may be a good idea to become informed about
the disease and to ask your doctor questions as to why he/she is concerned about
Lupus. For years they tested me for Lymes disease and other neurological diseases as my symptoms were more like that than it was like Lupus. I gather they can look very similar. They call Lupus the "Great Imitator" for this reason as it mimics other diseases. Please keep this in mind.
Still, we are always here now and in the future should you have any questions or need support. Hope it is just the Lymes disease. From what I hear that is enough of a battle for you. My daughter and a friend had Lymes disease it took a long time but they eventually got better. Hopefully they found your right away and your getting good treatment. I wish you the best - Kristin
Dx: Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.