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Regular Member

Date Joined Jun 2007
Total Posts : 339
   Posted 8/3/2007 5:02 PM (GMT -7)   
Hello all,I'm being tested for Lupus, and I'm a bit scared of the results. I'm also being treating for Lymes. Anyway, does anyone have a really good list of Lupus symptoms, and maybe tell me if it's an absolutely awful diseas, and how do I get rid of it. Needless to say, I am freaking out. Thank you so much.
Brainfog is cruel.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 8/3/2007 5:14 PM (GMT -7)   
Hi Jenisis:

Sorry to hear that you've been sick. I wanted to welcome you to our forum. Lymes and lupus are a lot alike in someways. A good place to look at the symptoms of lupus is www.lupus.org they'll list all the symptoms for lupus.

Lupus varies from person to person. Some ppl have very little problem and other can have severe organ involvement. Currently there isn't a cure for lupus, but it can be well controlled with medications. This is a great place to ask questions and see a glimpse into our lives.

I've had lupus for 19 years and I'm one of the unlucky ones, my lupus very very severe and I've got serious organ damage. I also have another issue of having cancer now that's treatable so the two diseases feed off of each other.

Try to take a deep breath and not freak out over it yet. Lupus is very very hard to dx and like I said lymes is a lot like lupus the two can be confused often. If we can be of any further help please let us know. Welcome again to our forum.

Take care,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/3/2007 5:19 PM (GMT -7)   
Hi there Jenisis, well barb beat me to the bunch. I also want to add that lupus is not nearly as fatal as it used to be so like barb said take a deep breath. Yes it can be relentless but there are alot of meds out there can help. Some people go into complete remission and some people go thru there whole life never even knowing they have it. So please don't freak out.
Welcome to the group. Holler when ever you want to talk or have a question
God bless
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax.5mg
When things are really dark look up. You can see the stars.

Regular Member

Date Joined Jun 2007
Total Posts : 339
   Posted 8/3/2007 6:07 PM (GMT -7)   
Wow, thank you so much for the pick-up and possitive notes. Thank you. I'll let you know what my test reveal.:)
Brainfog is cruel.

Forum Moderator

Date Joined May 2005
Total Posts : 7559
   Posted 8/3/2007 6:08 PM (GMT -7)   
Check the links in blue at the bottom of my signature for more lupus information and how they diagnosis lupus. The first one should answer a lot of your initial questions (you need at least 4 of 11 symptoms).

Glad you found us, keep posting if you have more questions!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Regular Member

Date Joined Jun 2007
Total Posts : 339
   Posted 8/3/2007 6:32 PM (GMT -7)   
Ok then, I really don't have any symptoms, except for being sensative to sun light, and Lyme related issues, this is scary. Thank you.
Brainfog is cruel.

Veteran Member

Date Joined Mar 2006
Total Posts : 2606
   Posted 8/3/2007 6:46 PM (GMT -7)   

Welcome to the forum. You'll find some wonderful and supportive folks here who are always eager to answer questions when we know the answers and to offer support even if we can't answer your questions.

And if we don't know the answer, we'll give it an educated guess. So here goes my best hunch. If you aren't showing any symptoms and you do get a diagnosis, that most likely means that your lupus is very mild.

Are you active in the Lyme Disease forum? Friendly folks over there. My PCP thought I had a tick bite and I panicked so I went over there for some info. Turns out I had shingles which is a better choice than lyme disease but it was great to have somewhere to turn for help and support.

Let us know what you find out.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 3 mg, actonel, tri-est (compounded estrogen) 7.5 mg, imitrex, cymbalta 30mg, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined May 2006
Total Posts : 236
   Posted 8/4/2007 7:23 PM (GMT -7)   
Jenisis: Welcome to the forum. Glad to hear you haven't met the criteria. Perhaps the doctors are just concerned due to some bloodwork abnormalities. They sometimes can go either way. Some will have Lupus or another connective disease and some will not. It is possible that you are borderline for the disease, and if it shows up at all, you may not have it for a couple of years. I started that way and from what I was told I could have Lupus later or not. Unfortunately, I do have it now. But it is 10 years after I was told I was borderline.

It may be a good idea to become informed about the disease and to ask your doctor questions as to why he/she is concerned about Lupus. For years they tested me for Lymes disease and other neurological diseases as my symptoms were more like that than it was like Lupus. I gather they can look very similar. They call Lupus the "Great Imitator" for this reason as it mimics other diseases. Please keep this in mind.

Still, we are always here now and in the future should you have any questions or need support. Hope it is just the Lymes disease. From what I hear that is enough of a battle for you. My daughter and a friend had Lymes disease it took a long time but they eventually got better. Hopefully they found your right away and your getting good treatment. I wish you the best - Kristin
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  

Veteran Member

Date Joined Jan 2007
Total Posts : 2446
   Posted 8/5/2007 9:05 AM (GMT -7)   
Jenisis said...
Hello all,I'm being tested for Lupus, and I'm a bit scared of the results. I'm also being treating for Lymes. Anyway, does anyone have a really good list of Lupus symptoms, and maybe tell me if it's an absolutely awful diseas, and how do I get rid of it. Needless to say, I am freaking out. Thank you so much.

Hi. as u know Lyme can sometimes trigger an auto immune illness. The symtoms of lyme can mimic lupus.
I'm beng tested for Lyme tomorrow and then sending my blood off to Igenex.
Are u on Plaq for the Lyme?

Regular Member

Date Joined Jun 2007
Total Posts : 339
   Posted 8/7/2007 7:04 PM (GMT -7)   
Hi guys, sorry I'm late. Thank you all for the great inormation,please oh please feel better.You all are so not well, please take care.
Peacesoul, welcome to the Lyme world. I'm actually on Doxy.
Brainfog is cruel.

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