Posted 8/10/2007 1:07 PM (GMT -7)
Sorry this happened to you Barbara, but glad they found the clot. That was really really good. I imagine you must be sick of hospitals, doctors, nurses, and whatever it is they give you for nourishment in there, let alone all the rest of the poking and prodding and more. I'm just so glad that they found this and hopefully all this means you are heading up for a long peaceful wonderful remission of sorts, you certainly deserve it. I was thinking that with all the stress you are going through outside of the disease stuff, moving, family, your hubby's retirement and all, maybe is triggering this some and when that all settles down, maybe so will your disease and sometimes the hospital can get you away for a while and force you to rest some, though I imagine they keep waking you up all the time for one thing or another. They did that to me whenever I have been in. The give you good drugs and you finally get out of pain and are resting peacefully and then they slam on the lights and shake you or say something in that annoying voice, no matter how nice you are, its annoying after like the tenth time. I hope they aren't doing that you. Then IVs are always a problem with me and that dumb buzzer goes off if I move just a little and eventually I just start pushing puttons! I hope you get peace and quiet and I'm so glad they caught the clot. You are in my thoughts and prayers always.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 8/11/2007 9:48 AM (GMT -7)
Barb,
  I hope your feeling a bit better today....(((Hugs))). I will check in with you a little later today. I'm sending positive thoughts and prayers your way sweetie!
                             Lots of love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted 8/11/2007 8:54 PM (GMT -7)
Barb,

I know how much you hate being in the hospital. I'm so sorry you ended up in there again. I hope they get everything under control quickly and you feeling as well as possible all things considered. I think of you often, sweetie. Always in my prayers.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Posted 8/12/2007 7:56 AM (GMT -7)
Hi Barb
 
((((((((((((Barb))))))))))))) I hope you are starting to feel a little better. You are in my thoughts.
 
lots of love
tash
Posted 8/12/2007 8:54 AM (GMT -7)
Oh Barb, I'm so sorry this is happening to you and that you are back in the hospital again. My heart just breaks for you. The clot sounds scary and I'm glad they caught it. I'm praying for any kind of relief and peace that you can get during all of this. I hope you can feel all of the love and support from everyone here. I'd love to call you, but I worry that I'll interrupt while you are sleeping. You are always in my prayers Barb. I'm sending you lots of love and hugs. Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums
Posted 8/12/2007 12:34 PM (GMT -7)
I talked to Barb this morning she sounded like she had a bad night. Her iv had to be replaced and they had a very hard time getting a new one started.She has no idea of when she may get to go home no word of it so far.I'm praying everything will go well and she'll get some releif soon. Just thought i'd give you ladies a quick update on her hope your all doing well. Hugs Kay
Posted 8/12/2007 12:46 PM (GMT -7)
Tks Kay,
   I'm glad you posted an update on Barb. I'm sorry she had a bad night...Bless her heart!
   Barb, you are always in my thoughts and prayers sweetie!
                                              Love, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted 8/12/2007 6:04 PM (GMT -7)
Just letting you know I'm thinking of you and sending good wishes and prayers your way.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 8/12/2007 7:29 PM (GMT -7)
 I talked to Barb earlier tonight and she is in alot of pain. She said her back in hurting terribly like back labor when giving birth...Ouch!
 Barb, I hope they have gotten that pain under control by now and your resting. Hang in there sweetie. I wish things would turn around for you for a change...(((Hugs))). Your in my thoughts and prayers.
                                      Lots of love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted 8/13/2007 9:45 AM (GMT -7)
Barb,

I hope you're getting a little relief from your back pain. I had back labor with my second child and wouldnt' wish it on anyone! You poor thing, you're suffering so much and I feel so bad for you. I hope that knowing that you have friends here who are praying for you and thinking of you all the time gives you a little smile. I'm sending lots of loving ((((((hugs)))))) your way and I hope you get to go home real soon.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Posted 8/13/2007 8:47 PM (GMT -7)
Barb, hope you are out of pain and resting.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 8/13/2007 9:06 PM (GMT -7)
I'm sorry you are going through so much! sad  
 
Sending hugs and prayers, Barbara.
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain

Posted 8/13/2007 10:23 PM (GMT -7)
Hi Barb!

I have you in my prayers and hope that your pain is lifted from you so very soon! Your smiling words and encouraging thoughts for everyone else are being reflected back to you in your time of pain. Can you feel the strength of love being sent your way from your HW friends?

Rest well and be well!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 

Posted 8/14/2007 8:24 AM (GMT -7)
Barb, I hope this resolves soon and that the pain is controlled. I am so sorry you are in the hospital again. Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007 Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco , Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

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