I'm glad you found this forum. the people here are so wonderful and they have helped me so much and there is always someone to talk to here it seems. I understand the move. I'm very isolated, moving to where my boyfriend could work and we could afford to live, and it is extremely rural. I'm very isolated and cut off and this forum has really helped me. I can relate with the guilt and the excuses and the family just not understanding and it is so hard to explain to them how you feel, how tired you get, how painful, stiff, nauseaus, etc all the things that you can feel that get worse with activity sometimes. And the thought of running strong, being really active, for me is terrifying. But you shouldn't feel guilty, though I know sometimes we cant help how we feel, maybe not so much guilt as sadness, but either way, it's not your fault and they will come to understand with time, and this is great place to talk to people about it. Thanks for joining and I hope things work out for you and your family.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments