Welcome to the forum. I'm sorry you are in so much pain and I hope that once you get through the testing process your doctors will have a good idea how to treat you. Are you on any meds now?
You don't say how old your children are but I gather they are very young. I don't blame you for being angry, especially since you have severe pain. Do you have a significant other or someone who can help you with your children? My kids are all grown and I can't imagine the struggle of having to take care of young kids when you feel bad all the time.
I don't give my granddaughters, who are 6 and 8, any details about my illness but when I'm feeling extra bad, I just tell them that I don't feel well and ask them for their help. I think little kids need to know that they are loved more than anything else. If you can keep your anger from them and enlicit their help doing things you normally would do for them, they may feel like they are being helpful as opposed to feeling like they're a bother. I don't promise my family anything at all. It's always, I'll be glad to do so-and-so, but let's see how I'm feeling when the time comes. That way I never have to break a promise.
I hope you have family or friends that can help you with your kids. If you're in that much pain, you need a break from them and they may need a break from you as well. A good support group can be such a godsend.
I'm so glad you're here. There are a lot of wonderful people here who have lots of good advice and suggestions. Let us know more about you. And good luck with all your pain!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin