Welcome to Healing Well
I have a 13 year old myself and I can't imagine what you and others go through with this and such small children. I really admire you for that. It's sometimes hard to communicate all of this with children, I find it difficult even with my son. I agree with Pat, at such a young age just let them know when you aren't feeling well and once they get older you can really explain what is going on.
When did you start the Hydroxychloroquine? Its very common that this medication takes a while (3-6 months) to get the effect but it WILL make you feel better when it does. Its kind of hard being patient with it, but its very much worth it. I hope you can get better soon.
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements