Posted 8/11/2007 1:14 PM (GMT -7)
Hi Diane--
I'm so glad they caught this in the early stages. There are two forms of PBC, from what I've been reading, primary--like you said a disease of its own, or secondary--caused from another disease like your lupus. They have been successfully treating this condition for a long time and there are many things they can do should the disease progress, but since you are getting treatment now, hopefully that will not happen. Luckily there is a lot of research on PBC and experience with it and the fact your liver isn't damaged is terrific news and with treatment you can prevent that now. Kudos to your on-the-ball doctors and I'm so glad that while, you do have a problem brewing, they feel they can stop it in its tracks before damage occurs. I'm sorry you have liver disease and I understand what that is like, and I wish so much you did not have it but am so relieved thta they can treat it and you have no damage. That is really good news.

I hope they give you some meds for pain and you take extra time to rest. When I was working, I used a whole week one time after a liver biopsy (I've had 4 or 5, I've lost count). I hope you feel better soon and am glad they figured this out so early. Most people don't get diagnosed as quickly as you. That is very good. You will be in my thoughts and prayers, ocean.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 8/12/2007 8:42 AM (GMT -7)
Diane, I'm sorry to hear about the results of your biopsy, however it's good that they think it is treatable and that hopefully the disease won't progress. I read your post about the biopsy and got tears in my eyes when you talked about how uncomfortable it was for you. I just hate that any of us have to go through some of these very painful tests and procedures. I really hope the meds help you feel better, but I do understand your hesitation about getting too excited about possibly feeling better. I'm hoping the soreness from the biopsy goes away soon. Please continue to take good care of yourself and let your mom continue to take care of you too. Love and hugs Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums

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