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Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 8/13/2007 11:05 AM (GMT -6)   
For those of you using or considering the use of Cellcept, here is what the Lupus FOundation has to say about it! (Good news!)

Cellcept article

I know Cellcept has really helped me - the only side effect is minor hair loss and change in hair texture -- a small price to pay for regaining my cognitive functions!!!


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 8/13/2007 11:33 AM (GMT -6)   
Lynnwood, that's great news. My rheumy really likes cellcept and is sorry that it's causing my creatinine levels to rise. It makes me feel so good! I'm still taking 250mg twice a day which is a fourth of the amount that she started me on, but I'm still receiving benefits from it.

And my cognitive functions are better too! For a while I felt as though I were going down the slippery slope of dementia.

Thanks for posting the article.

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 8/13/2007 12:13 PM (GMT -6)   
Thanks for the article Lynn. I have heard nothing but good things about Cellcept and am still putting this on my list for when my doctor wants to go with something more than the Plaquenil. I'm not there yet but this is a good candidate it seems like for me when its time. Thanks again!!
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements

New Member

Date Joined Jul 2007
Total Posts : 18
   Posted 8/14/2007 11:35 AM (GMT -6)   
I have increased my Cellcept up to 3 (500mg) per day and I am having horrible brain fog!!!  I just can't seem to focus... not a good thing for me at work.  I have to go the the Rheumy on Friday.  I am wondering what he will do.....
SLE diagnosed 2003, Pulmonary Embolism 2002

Plaquenil 200mg 2xday, Coumadin 15.5mg alternating with 17.5 mg per day, Cellcept 500mg 2xday

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 8/16/2007 9:11 PM (GMT -6)   
Hey Lynnwood!! Thanks for the info. Its always nice to get a recommendation on these meds before needing them. glad it has helped so much. I didn't realize it could help cognitive function.

BTW: my son is running the Chicago Marathon in October . . . he's up to 18 miles in his training!!! I've thought of you often during his training.

In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 8/17/2007 12:08 PM (GMT -6)   
Hi Des--
I tried to get my rheumie to give it to me as it also is being used as a treatment for Interstitial Cystitis (bladder) which I may have just starting up. He says I'm not sick enough, but being on that strong immunosuppressant cream and having been put on interferon (a powerful immune system booster) which I need to undo, I feel so much better being so much more suppressed. I don't want to quit the cream even though its not helping my skin because it makes me feel better! Oh well. Thanks for the post Lynnwood! It was very informative!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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