I'm so glad you are in remission with lupus. Is that when they say your inflammatory stuff is down or is it something with ANA? At any rate I'm so glad you are feeling better and sounding back to your old self.
I'm so sorry to hear about your son because we have a similar problem that effects the adults in our family, but I know there are several metabolic glucose type disorders that affect babies at birth from looking at our stuff and they are so serious and I can't believe a pediatrician or neonatal specialist could be so awful. Actually, I do believe it. OUr medical system is so corrupt, and there are no avenues for malpractice anymore and licensing means little, with our greed culture, all anyone has their eyes on is the money. Medicine used to be a calling, like ministry.
The worst thing is when you know, you know darn well, that they are doing the wrong thing and they just give you that condescending smile and line of crap. OOOOh makes me mad.
Anyway, I feel so much for you and am so glad you seem to have gotten the pregnancy thing down by now. I always thought pregnancy was an autoimmune disease ;) It does feel like your body attacks itself sometimes, like there's a war going on!
Well, its so good to see you getting the care you have needed for so long now that you got your social security and the life you've deserved. Perhaps, not having to struggle so much has helped. I swear, nothing can make you sicker than waiting for disability. Well, thanks for your reply to my post. I still have some questions. Take care and happy for you!!!
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments