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Regular Member

Date Joined Aug 2006
Total Posts : 142
   Posted 8/16/2007 10:28 PM (GMT -6)   
Hi everyone. I have quick question. How many of you have pain meds you take, like on a regular basis?
I take celebrex daily and tylenol usually about twice a day. Sometimes I really feel like I need a little more relief. Like at night so I can actually sleep, or if I did too much the day before. I feel kind of akward asking the doc for something, more I hate to sound like a drug-seeker!  I think I would actually only take it a couple times a month, I can usually deal with the break through pain from tylenol, but sometimes......
Dx: UCTD,Raynaud's,iron deficientcy anemia,proteinuria
Rx: Multi-rec folic 500, Mobic 15 mg, Plaquenil 400mg

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 8/16/2007 11:43 PM (GMT -6)   
The only "narcotic" pain med I take is Darvocet occasionally. Non-narcotic meds help also for me... I take 1000 mg of Naproxen daily (NSAID), Lyrica 50 mg daily, and sometimes Chlorzoxazone which is a muscle relaxer. The muscle relaxer helps when the pain does not let me sleep but sometimes can make me feel worse in the morning. You may want to see if he will prescribe Darvocet since you can handle Tylenol, out of all the narcotics I think its the least strongest one which may be a good one to start with.
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/17/2007 8:29 AM (GMT -6)   
Melissa, this is definitley worth talking to your doctor about. I can really relate to what you said about being nervous to ask for anything because you don't want to sound like you are drug seeking. I hate that the people who do abuse these meds make it so much harder for people like us to get some relief. You might just tell your doc that there are times that your pain is so bad that the meds you are on aren't controlling it and is there anything else you could take that would help.

I take tramadol (Ultram) 3 -4 times a day and it usually keeps my pain at the bearable level. Tramadol is a close relative of narcotic pain meds, but there's a lower risk of addiction and abuse, so docs are more likely to prescribe it. I also take a low dose of hydrocodone when my pain is really bad. My pcp was the one who initially prescribed it and my rheumy has now taken over prescribing it. When my rheumy first started prescribing it, he didn't prescribe very many and I felt weird about asking for more, but on my visit yesterday i talked to him about it and he was very good about giving me more and it felt really good to open up the lines of communication with him about it. I have found that being open and honest about this issue is a good thing, especially if you know your doc well. I'm guessing if you have been with your doc for a while he will know you are not a drug seeker.

I hope you and your doc are able to talk about this. I know it's a sensitive issue, but you also deserve to have relief from your pain.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 8/17/2007 12:00 PM (GMT -6)   
Hi Melissa,
I agree with hippimom and the others about pain. Being in pain all the time or even in some pain all the time is bad for your body and can lead to the development of fibromyalgia, which you definitely do not want to have, if you don't already have it. It just makes the pain worse. I agree with hippimom that Ultram (tramadol) is a great pain reliever, it is not exactly a narcotic, but works like one, like she said and it can be very effective on certain types of pain. I have taken it for as many as five years straight 3 times a day and quit it with absolutely no ill feeling, other than the return of my usual pain. Many docs don't mind prescribing Ultram, it can have refills on it, unlike narcotics, and I go through 180 a month. I started back on it in pain management and many docs have told me there is no problem with taking it or for them prescribing it. It does not work for migraines or any type of headache, at least not for me. I also take some hydrocodone when things get worse, I get about 20 a month, unless something worse is going on. I couldn't get through without it, my neck and back are so bad and I'm allergic to so many other good meds due to my liver. Take care and I hope you get out of pain soon. You might be surprised by how your doc reacts, they can be very understanding sometimes.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 8/17/2007 11:03 PM (GMT -6)   
Greetings Melissa!

My GP actually prescribes methadone for me. He started me on this when I was having frequent kidney stones and I complained about the vicodin that he had originally gave me. The methadone does not give you a "high" feeling but it does quite a number on your pain. For the first few weeks I did notice feeling a little more sleepy right after taking a dose but this is not a problem now.

I still have kidney stones quite regularly and he says he will keep me on this drug until well into my 90's since it is also great for my joint pain from the RA. I hope I live well into my 90's - LOL!

Methadone is mildly addicting and he says that if I want to ever go off it he will taper off slowly to avoid any withdrawal. Some people do not have problems going off of methadone but I have been taking it regularly for almost two years now.

Methadone is an older drug, too, so it is not very expensive. It is a narcotic, however, so it cannot be called in by the doctor and he cannot give me refills. I have so many appt's, though, so this not really a problem.

I hope this helps! Good luck!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 8/18/2007 7:16 AM (GMT -6)   
Hi Melissa.  I take celebrex twice daily and arthritis tylenol 2-3 times a day.  For bad pain I take neurontin (gabapentin).  The arthritis tylenol usually works well for me and it lasts several hours.  I recently asked my rheumy for something stronger and he prescribed codeine, but I really didn't feel much difference between the codeine and the neurontin/arthritis tylenol combo, so I don't take the codeine.  I also take flexeril every night for stiffness.  I hope this helps.  Hugs!

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac,  celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 8/18/2007 7:32 AM (GMT -6)   
I have tramadol and can get narcotic pain pills if I need them. Simply put managing the pain is the doctor's job and if you make it clear you want the least dose of the med that works it makes it easier for the doctor.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 8/18/2007 9:14 AM (GMT -6)   
Tramadol works for me. My doctor tells me to keep it in my system and take two every six hours. It doesn't kill the pain but it really takes off the edge, and it's not addicting.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 8/18/2007 11:47 AM (GMT -6)   
Hi Melissa,
   I agree with the others about Tramadol. Thats my choice as well. I'm very sensitive to pain meds. They either make me sick or break out in a rash but, the tramadol works well. I only take it when needed.
   Like the others said, talk to your doctor. I hope you find something that works well for you. Take care and keep us updated. You will be in my thoughts and prayers.
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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