Thank you so much everyone for your responses. I started seeing this rheumy about
a year ago and he was my third one. I was feeling pretty hopeless about
getting a diagnosis and getting any help. Luckily one of the members who doesn't post much here, lives a few hours from me and she gave me the name of her rheumy that she said was really great. If she hadn't given me his name, I'd probably still be floundering in the dark looking for a doc that would help me. I was so greatful that he diagnosed me the day he saw me and started me on prednisone which took me from being almost unable to walk to having something that resembled a life again. Even though I have always liked this rheumy, it was hard for me to talk about
things like pain management and other things because of some of my bad experiences with other docs in the past. I'm so glad I finally bit the bullet and finally talked about
When I do taper my prednisone I'm going to do it 1 to 2 mg at a time, but will stay at each new dose for about
4-6 weeks at a time, while alternating every other day with a little bit higher dose.
For those of you who are still searching for a good rheumy don't give up. I was about
to give up before seeing my current rheumy.
I took my new med a little bit ago and I can feel it starting to make me sleepy. Hopefully it will work well for me with minimal side effects.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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