I just wanted to say welcome to our forum. Sorry you've had a bad day. I saw your earlier post about John Hopkins Hospital. I have to say that my experience with them was a bad one too. The doctors that saw me wanted to undiagnosed me and I wasn't having a part of that. I live in the metro DC area and I go to the National Naval Medical Center. Some of my docs are good and some aren't.
I'm sorry you're having a tough time finding anyone to help you. I hope that you find a doctor soon that will listen to you and help you get your pain under control. To answer your question so of the members here exchange phone calls time to time, or emails. We try to meet up in the chat room daily and talk with each other.
I understand your frustration I've had lupus 19 years now and I'm also sick with a rare blood cancer. I'm dying and there's not a darn thing I can do about it. Except to hold on and go for the ride. Anyway, welcome again and looking forward to hearing from you.
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.