Vitamin Deficiencies

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Veteran Member

Date Joined Dec 2006
Total Posts : 707
   Posted 8/17/2007 6:54 PM (GMT -7)   
Hi everyone.  Hope everyone is ready for a nice restful weekend.  I never thought it would get here.
I went to my GI doc today for the final results of my liver biopsy.  I do have Primary Biliary Cirrhosis and he has given me a med to help hopefully halt the disease in its tracks or at least slow the progression of the disease in my liver.  He is not sure if this is a primary altogether separate disease or lupus caused disease.  I am also in the middle of a bad flare and am hurting pretty bad.  Have given up on my rheumy for any help and have an appt next Tuesday with a new PCP whom I've heard is very thorough as far as diagnoses are concerned so hoping she can put me on the Plaquenil and painkillers I have been trying to get for almost a year now.
I have been depending on my family for a lot of help the past couple weeks and they seem to be accepting the news of the new illness much easier than they did the diagnosis last year of lupus.  I guess they can now see that it is not all in my head and that there truly is something attacking my body.  I've gone from caregiver to taker of care and am a little more comfortable with asking for help when I need it.  Never thought I would get to that point but as I live alone and still have to eat and stuff am relying on family to help with groceries and carrying stuff up the steps for me, etc.
I am wondering if anyone here has vitamin deficiencies.  The GI doc had me get a bunch of blood work done today checking for vitamin B12, D and A deficiencies.  They can happen with the liver disease and am wondering if it is a lupus thing as well.  He said it could be contributing to some of the intense pain I am having; evidently vitamin D deficiency can also cause muscle weakness and pain, etc.  If you do have a vitamin deficiency, are you taking supplements or are there dietary changes that can be made?
I have been on reading posts and hopefully soon will feel up to responding more often and getting more active again.
Diane (ocean1)
Muscle disorder 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra and Zantac; Lunesta, and Ultram PRN.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 8/17/2007 8:00 PM (GMT -7)   
Hi Diane:

I have a B12 deficiency; I give myself B12 shots monthly. In the beginning I was doing the shots weekly. After one month of doing that, I switched to once a month. According to my hem/onc doctor I'll always need B12 shots. I'm not sure if the vitamin deficiencies apply directly to lupus per se. But with all the immuno suppressants it wouldn't be surprising if we didn't have them.

I hope your new PCP can help you and that you get the care you need as soon as possible. I'm sorry that you've got to go through so much. Please keep us informed on how you are doing, I'm truly sorry about the Cirrhosis ((hugs)). I'm glad to hear that your family is there for you. It's hard for our families to accept that we're so sick and they can't do anything to help us out of our mess.

Please keep resting and try to get some sleep. Looking forward to hearing from you again.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Veteran Member

Date Joined Dec 2006
Total Posts : 707
   Posted 8/17/2007 8:14 PM (GMT -7)   

Thanks Barb.  I hope you are feeling better.  It is sooooo good to see that you are up to posting again.  You have in my thoughts and prayers.  How are you doing?

Thank you so much for replying so quickly.  I don't feel so alone now that I have you all to turn to with questions and for support.  I love you all.

Yeh the doc isn't sure if the vitamin deficiencies would be lupus related or just another thing to add to our everygrowing list of diagnoses.  Vitamin B12 shots?????  Oooooh I hate shots.  You'd think after all the blood work I've had to have I'd be used to needles but NOT.  I cringe and almost faint at the site of a needle.  I always have to be a big baby about getting my blood drawn and the girls that do it are very familiar with me and my skinny little veins and exactly what procedure to use to get the most amount of blood with the least amount of discomfort to me.  I think me fainting on them a couple weeks ago did it.  They had me lay down on a hospital bed before they did anything today.  Is there any other way to get the vitamin B12 besides injections?

Diane (ocean1)
Primary Biliary Cirrhosis 2007; UCTD 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra, Zantac, Lunesta, Ultram PRN.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 8/17/2007 8:22 PM (GMT -7)   
Hi Diane:

I can totally understand the dislike of needles and shots. I believe you can take B12 in a capsule form. Sorry to hear that you fainted on them, but it happens to a lot of ppl. My 14 yr old daughter always faints when her blood is drawn.

Hope you have a good weekend. Take care and let me know how things turn out.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/19/2007 3:10 PM (GMT -7)   
Hi Diane, b12 here too. Just to add to what Barb said yes you can take them in pill form. There is somthing about lupies that sometimes don't absorb vitamins the way they should. They make a vitamin B12 that you can dissolve in your mouth so it goes directly to your blood stream. I also take omega 3 and 6. Vitamins hard sometimes hard to tell weather they are working or not unless you stop taking them. But B vitamins seem to be helping me with a little more energy. Let us know how your test results turn out.
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

Regular Member

Date Joined Jul 2007
Total Posts : 261
   Posted 8/19/2007 8:02 PM (GMT -7)   
Hi, Diane. I don't see that you're on prednisone now, but just thought I'd add this just in case. I don't know if you've been on it recently, but I found on that UK Lupus site I posted about previously that prednisone depletes your body not only of potassium which I've been told about by my docs; but also vitamins B6, D, C and zinc. You might check for the same happening with some of your other meds. Hope this helps.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 8/20/2007 8:36 AM (GMT -7)   
I also take B12 but luckily I do absorb the pill form. I don't dislike shots too much but I still can't get over having to give one to myself or to someone else. I'd probably have to ask my hubby and I'm sure he would feel the same way. It's amazing what we can do though if we have to do it. Before I started the B12 supplements I was borderline low in the mid 300s and now the last time my blood was checked, I was in the 800s!! B vitamins are extremely important for us and helps with the fatigue also. Let us know how your tests come back.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements

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