Hi everyone. Hope everyone is ready for a nice restful weekend. I never thought it would get here.
I went to my GI doc today for the final results of my liver biopsy. I do have Primary Biliary Cirrhosis and he has given me a med to help hopefully halt the disease in its tracks or at least slow the progression of the disease in my liver. He is not sure if this is a primary altogether separate disease or lupus caused disease. I am also in the middle of a bad flare and am hurting pretty bad. Have given up on my rheumy for any help and have an appt next Tuesday with a new PCP whom I've heard is very thorough as far as diagnoses are concerned so hoping she can put me on the Plaquenil and painkillers I have been trying to get for almost a year now.
I have been depending on my family for a lot of help the past couple weeks and they seem to be accepting the news of the new illness much easier than they did the diagnosis last year of lupus. I guess they can now see that it is not all in my head and that there truly is something attacking my body. I've gone from caregiver to taker of care and am a little more comfortable with asking for help when I need it. Never thought I would get to that point but as I live alone and still have to eat and stuff am relying on family to help with groceries and carrying stuff up the steps for me, etc.
I am wondering if anyone here has vitamin deficiencies. The GI doc had me get a bunch of blood work done today checking for vitamin B12, D and A deficiencies. They can happen with the liver disease and am wondering if it is a lupus thing as well. He said it could be contributing to some of the intense pain I am having; evidently vitamin D deficiency can also cause muscle weakness and pain, etc. If you do have a vitamin deficiency, are you taking supplements or are there dietary changes that can be made?
I have been on reading posts and hopefully soon will feel up to responding more often and getting more active again.
Muscle disorder 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications: Allegra and Zantac; Lunesta, and Ultram PRN.