It sounds like you have been going through a real rough time and I'm so glad you have come here for help and support. Hippi said it all. We are a wonderful little family and help each other get through the rough times we all experience with this disease.
I don't have lupus nephritis but others here do and I'm sure you'll hear from them. 60mg of prednisone is a huge dose. What is your taper schedule? I was on 60mg for 2 months and it really helped stop the progress of my disease. I've now tapered down to 7.5mg a day. The side effects can be pretty rough, as I'm sure you know, and any time you want to rant and rave about that, feel free to. One of the side effects I had when I was on a high dose was water retention. I know what you mean about it hurting to smile. And I only wear pants because my ankles are so swollen that they resemble those of an elephant, or an old lady. :)
I'm also on CellCept. I've had to lower my dose from 2000mg a day to 500 mg a day because it was hurting my kidneys, but boy oh boy, did it help me feel better within a couple of weeks. I got more energy, had less pain, and my brain fog lifted. I haven't had any side effects at all from it other than the fact that my creatinine levels went up. I think that's just an unusual side effect. It's a fairly new drug and as you know, it's mostly prescribed for lupus nephritis. It sounds like you have a good rheumy.
I have a daughter who's about your age and it breaks my heart to see someone so young having to go through this. You can do it, though, and we're here to support you, to listen to you, and to offer whatever information we might have. You're now part of our family and I hope you'll check in often. There are people of all ages here, and I'm sure we have members who are your age as well.
Hopefully you'll soon feel the effects of the meds you're on and you'll start to feel better. Please let us know how you're doing.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin