Darlene, you must have read my mind this morning. I was planning to e-mail you to see how you were doing since I hadn't seen you here for a while and I know how sick you had been. I can't tell you how sorry I am that you are still so sick and that you are still battling the c-diff.
I really think you need to call your rheumy and that you should be seen. It really sounds like you are flaring, but your rheumy would be the one who could help sort that out. Between your symptoms and running some labs your rheumy could tell you if you're in a flare. It wouldn't surprise me at all if you were flaring. The c-diff is so hard on your body that it could have set off a flare. For me, even a simple cold can throw my lupus into a flare. Hopefully your rheumy could figure out something to keep you more comfortable and maybe something to help you sleep better.
I wish there was something more that someone could do for you - you sound so miserable. I just wish there was something that would give you some relief. You have been on my mind lately. Just know that you have lots of people here who care about
you and want to hear from you whether you are feeling rotten or feeling better. I'm praying you get some relief soon.
Love and hugs
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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